LOVE THESE LAZY DAYS

Off work Friday. Dad and I took Colby to see Cars 2. I don't know about anybody else, but I think it totally sucked compared to the first. Sequels, huh? However, Colby seemed to enjoy it and that's what matters. Was off yesterday but ended up typing extra. Girl gotta make hay while the sun shines, right? I was off work today so Colby and I just hung out. I was still in my pajamas at 3:00 (no surprise there huh)? I wouldn't have gotten out of them then except I was going to Mass. Did that, went to Kroger, came home and put the p.j.'s right back on. Good stuff.

Tried to get Colby to practice with his eye gaze today, but he just wasn't feeling it obviously. And that's okay. I'm not going to lose my mind over it anymore. We have the communication device. We have the eye gaze technology. We have an extremely dedicated, talented speech therapist who is rather fond of Colby and thinks he's darn smart. I love it that she challenges him to be his best. It's all good. We can try again tomorrow.


August is SMA Awareness Month. I'll blog more about SMA later, tonight my heart can't handle it. Be aware that SMA still SUCKS and I freakin' HATE IT. I think overall I've handled Colby's diagnosis about as well as anyone could, but make no mistake. I would be lying if I said I would give anything if he didn't have SMA. I love Colby just the way he is, but I also know he's been robbed of an independent, healthy life and I HATE IT, I HATE IT, I HATE IT. As if you didn't already know, SMA SUCKS!!

Gentle reminder: The Sellersburg Moose Lodge is holding an indoor yard sale for us as a fundraiser for the "Make a House Colby Accessible Fund". This will probably be the last fundraiser for the next few months. If you would like to donate some treasures to the cause, you can take them to the Moose this week on August 10, 11, 12. If you're a yard sale attending kind of person, go to the Moose next Sunday, August 14, 10:00 a.m. to 4:00 p.m.

I'm off to bed. Gonna get up early and make some phone calls (blah). Trying to get Colby's supplies ordered and get him ready for his first day back to school on August 15. Woo hoo. Also trying to get extra nursing hours lined up for the you know what on the 23rd. Good night peeps.