Thursday, October 20, 2011

NEVER A DULL MOMENT

So what fun, witty Russ anecdotes do I have to report today? I've got a couple. THANK YOU, Bonnie, for driving and taking me to my ENT appointment. Got my stitches out, scar looks pretty good. Dr just used the same scar from the 1st surgery. Dr told me there was no cancer in the right side of my thyroid. Bonnie was like, hey, that's great news. But you know, it never dawned on me that there might be. I just always assumed removing the right side was preventative. I never thought for 1 second there were cancer cells on the right side. Yep, still hanging around Denialtown. The ENT will set up an appt for me with an endocrinologist. I may not have to have the radioactive crap done, which would suit me just fine. Then all this stupid thyroid stuff will be done and over with.

Colby's speech therapist came over and worked her magic. The eye gaze is working again. She has also been helping my technologically-challenged brain with some pointers on Colby's iPad. We put a Spongebob app on it. Colby is fascinated with it already. I'll be hearing the noise from that app in my sleep tonight.

Mom watched Colby while I went to the dr, then stayed around and helped me get some stuff done. I decided Colby needed to sit up in his chair for a while, so we used the Hoyer lift. Things were going just fine, Colby was in his chair and we were trying to take the sling off. Some moron (okay it was me) left the wheelchair on. Mom was trying to get the sling off and accidentally bumped the back drive button. Then the chair proceeded to run over her foot and catch her ankle between the chair and the wall. Yeah, good stuff. I was about to shit my drawers. She says her foot and ankle are okay, but I don't know. Looked pretty darn painful to me. I felt awful that it happened. I'm so tired of not being able to pick Colby up. A couple more days and then we're done with this lifting restriction crap.

Then we take Colby in the living room. He's sitting up just in a white t-shirt and diaper because the bath aide was going to be here at 3:00 for his bath. Why get him dressed for a couple hours, right? Then Mom says, "uh Amy, there's a priest walking down the ramp." Craaaaaap! I totally forgot Fr. Jeff was coming over today. Is it written on my calendar, yes. Did I bother to look at my calendar today, no. He's new to the Cathedral and is getting out meeting parishioners. I've known about this for 2 weeks now. I said hey, come on in, the apartment is a mess and my kid is sitting around in his diaper. How lovely. I'm sure we made a fabulous 1st impression. Then I started telling him about Colby's 39-day hospital stay, then about my thyroid surgeries, then about my nursing issues. I bet he couldn't wait to get out of here. Think he'll invite himself back any time in the next year or 2 or 20?!

It's NEVER a dull moment around here as you can tell. Need to go hook up Colby's feeding pump for the night. Nitey nite everyone. TGIF is around the corner!

1 comment:

  1. Hey Amy,
    This is Maggie Huber, I did the photo project on Colby when I was in college. I've been thinking about you guys a lot lately and decided to look you up. I'm starting a magazine and I keep thinking about what you said when you let me do my project, you said "as long as one person sees this story (about Colby and SMA) then it makes a difference".

    I'm starting up a magazine of my own now called "THIS...is Louisville." The magazine is based on the idea that everyone has a story to tell. I want to tell the stories of the people in our city much like the story I did on you guys.

    I was wondering if you'd be interested in doing a follow up or if you know another family living with SMA that might be interested. I remember what all you dealt with at the time and I was amazed. I really admire the love you have for Colby. I can't believe it's been seven years, what a miracle! I remember when you guys celebrated half birthdays!

    Anyways, I know you're busy, but if you get a moment, please email me at maggiehuber@gmail.com. Can't wait to hear from you.

    Maggie

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