WAY WORTH IT

When we do Halloween around here, we do it BIG! Hey, wouldn't have it any other way. Colby was without a doubt the cutest cowboy EVER in his costume. He was set head to toe - hat, vest, bolo tie, marshal star, chaps, boots, holster and guns, lasso on his wheelchair and the finishing touch, a fake moustache. Every cool cowboy has a moustache of course. On Saturday we went to an outdoor fall festival thingy here in Louisville. Colby's "Aunt Kimmie" went with us. It was windy that day but the fall festival was short, which was good. Saturday night was WILD, I mean crazy, at 4th Street Live. I went with my friends, who happen to be sisters and were matching silver aliens that night, Joni and Jill. We had a blast. It was great to get out and be silly for a bit. Then for the actual Halloween day, Colby went to school where they go around to all the classrooms for trick-or-treating. Colby is in 4th grade but this was the 1st time he got to do the school t-o-t. In years past he's either been sick or had appointments in Cincy the day they did it. He was decked out as Colby Cowboy and I was wearing an Indian costume. Get it, cowboy and Indian? We got some really good pics. My mom went with us and a good time was had by all. Later Halloween night Colby and I went to his super fine babysitter's house for MORE trick-or-treating. Colby was tired by the time we got to Rosa's, so he had to wear his bi-pap the whole time. The old me would have freaked because Colby wasn't in his complete costume, it was getting late, he was tired, etc. But the new me was like hell yeah we're going trick-or-treating on Halloween night!

Colby was worn out by the time we got home. He even fell asleep in the van. My everything hurt by the time we got home. My feet from walking. My back from lifting Colby all day. Somehow I've managed to pull or pop or tear or mess up my right hip. Don't know what the crap I've done, just know it's been hurting for a week or so. I was pushing Colby in his manual wheelchair and we hit a bump in the sidewalk. Colby's wheelchair stopped and I ran into the back of it. Let's just say I have a bruise in a very interesting spot at the moment. Yeah, ouch. I had a headache from running around all day. Like I said, EVERYTHING hurt by the time we got home. Was it worth it? You better believe it. Would I do it again, absolutely. Loved spending such a special Halloween with my friends and my bestest, sweetest, cutest cowboy Colby.

Hey guess what I did today? I worked! First time since oh, I don't know, the middle of August. Left Colby alone for the 1st time with this new nurse. I was only gone a total of 4 hours, but I was a nervous wreck leaving Colby. Work went fine. Anyone who knows me knows I haven't had the best luck at that job sometimes. I have a tendency to break machines, leave there in tears, etc. But today went well, it all came back, kind of like riding a bike. Even had to change out ribbons and didn't tear up anything. Woot woot! I'm thrilled with this new nurse, and the best news, she's going to start going to school with Colby. Fan-freakin-tastic! She's wants to do it 3 days a week. I'm thrilled. That means I'll have to find another nurse to help around here, but getting Colby back in school, on the bus, with a new nurse takes priority. The whole nursing thing is exhausting sometimes. I'm going to blog about that one day in the hopes that it can help another SMA family. Although I don't know how much help I'll be, because at the moment, I'm still confused as to how many nursing hours Colby gets and for how long. Thought that was all worked out but now I'm not so sure. Exhausting I tell ya.

So glad to be reporting things are looking up around here. Nothing else has exploded. All major appliances seem to be in working order. Colby is well. I feel just a tad more sane than I did a month ago when we came home from Cincy. Still a long way to go, but just need to take baby steps to get there. Bye for now.