TUESDAY'S TALK

You can beam me up. Better watch out for flying polka dot pigs. They're building snowmen in Miami. Why would I say these crazy things? Because Colby Michael doesn't want to watch Spongebob Squarepants!!! I have NEVER seen this kid feel so badly that he didn't want his Bikini Bottom friends around. But right now he doesn't want it. He has slept and slept again today. You can tell he is SO over this crap all ready.

If you haven't heard, Colby has type A flu. Of all the things he could have tested positive for, I wasn't expecting that. So his underlying SMA leads to a weak respiratory system, which leads to him getting the flu. Getting the flu immediately settled in his lungs, leading to pneumonia. His lungs filling up with pneumonia brought on the effusion. Make sense? Basically, it's like this: SMA sucks and any little illness Colby gets goes straight to his lungs and causes chaos. Clinically he is doing better. Still has a little fever popping up but overall it is improving. He's down from 3 antibiotics to 2. We able to make some changes to his vent (for the better b/c his lungs are slightly improved). Continuing the Lasix to dry up the lung effusion. But as I said earlier, I've never seen him act this puny. He is just flat out wore out, which the docs say is perfectly normal when you have the flu. He's sleeping more than usual and when he is awake, he doesn't want to be touched, bothered or talked to as far as that goes. We're keeping it quiet around here so he can get lots of rest.

I'm a little stir crazy. My mom was here for a couple days, now dad is here for a couple. My BFF sent up her Kindle, along with tons of snacks. Thanks, Amy! Chomping on some Sun Chips right now. Saving the Ritz crackers until later haha. The nurse and I (yes it took both of us) just pulled out a slimy string of snot from Colby's nose. TMI I know but remember, that's what we SMA peeps talk about, along with bowel movements.

Need to get the iPad charged so I'll stop for now. More later.