Back to reality, back to the blah-blah business around here. We got home from camping yesterday afternoon about 1:30. My dad was here to help me unpack the van, thank goodness. Gave Colby his IPV and cough treatment, fed him, unpacked some stuff. Then he had PT. We are oh so close to ordering his new power chair! Just a few more details and decisions to hash out, then get that puppy ordered. Night nurse got here at 4:00. She is super-duper fabulous. She just walks in and starts putting things away, talking to Colby, unpacking supplies, etc. Tomorrow is picture day at school, so the nurse and I did our best to trim Colby's hair up some. She was like, you're kidding right, we're giving him a haircut? It looks fine, considering, haha. Gave him a bath after that. Changed his bedding. I did 2 loads of laundry. She helped me fold and put it away. Got Colby ready for bed. And oh yeah, it was TCM so we changed out Colby's trach, too. Made sure all of Colby's equipment was charged and ready for school today. But other than that, we just sat around and twiddled our thumbs all night.
Got a call from Walgreen's Infusion. Apparently Audubon ran the wrong Vitamin D test on Colby's labs, so yep you guessed it, had to draw blood again today. I was so pissed, but what do you do? As far as I know, we're still on schedule to take Colby up to Cincy next week for pamidronate infusions. Oh goodie. Can't wait to get back there for 3 or 4 days. We miss it so (note the sarcasm). But I do want him to have an injection before his VEPTR surgery, which is scheduled for May.
Colby had school today and he had a great day. Makes me a happy mama! I was a little worried because we had been camping. Thought he might be really tired, or extra gunky, but he was fine. I did talk to his PT at school about rigging up some other piece of equipment for Colby so he can lie down when he's not having a good day so he can still participate in class. Take a stander and just keep him flat maybe? Hmmm, don't know for sure what the best answer is, we're working on it. The shelving unit dude came over and took final measurements for the shelving system we're having installed in Colby's room. Looking forward to better organizing/rearranging Colby's room. Finally getting something done and off that to-do list. Went over and signed my new lease today, booooo. Stuck in this dumpy apartment one more year. The new backup battery was delivered. Mom came over and brought a bunch of stuff we weren't able to bring home in the van. Started my low iodine diet today in preparation for taking the radioactive isotope and getting another body scan in a couple of weeks. Blah, blah.
Well crap, the Reds just lost! I didn't watch the first 2 postseason games, which they won. Then they played tonight at home and lost. Dammit! That tears it. I'm not watching the next game.
I have a hair appointment on Thursday night. Thinking of going dark brown for the winter. Just can't decide. I liked my hair when I had red, but it faded so quickly. There's a part of me that says it's stupid to color my hair. Very lucky that I don't have gray yet (yet, I'm sure it's right around the corner). So why spend the time and money? Just to do something different I suppose. Decisions, decisions. So thankful this is the hardest of my decisions for the week so far, know what I mean?
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