Saturday, June 8, 2013

SUMMER IS HERE - BRING IT ON

School's out! School's out! Colby's last day of elementary school was Wednesday. His nurse wasn't able to go with him on Monday, but he did get to go Tuesday and Wednesday to finish up the school year. And what a school year it has been! Remember the mouth bleeding incident on day 2 of the new school year? Then he had to miss a ton of school due to not having a one-on-one nurse. Then he was supposed to leave the school year early for surgery, but of course that didn't happen either. See, you just never know around here. We make plans, but as always, our plans don't go as planned. I'm getting rather used to it by now. My sweet boy is going to be in 6th grade next year!! Holy crap on a cracker, how is that even possible?!  

Everybody keeps asking us what we have planned for the summer. Well, that's a good question. Originally we were going to be recovering from VEPTR surgery. Now, not so much. I've been thinking of taking him on a couple short trips. Maybe to Indy, I hear the children's museum there is kickass. Maybe Gatlinburg to the aquarium there. Maybe to Build-a-Bear, as they have Spongebob characters there I think he would like. Trying to decide if he's too old for that or not. I do know we're taking him swimming again this week. Looking forward to that. Other than that, we're sorta winging it for now.

I called Cincinnati Hematology a few days ago to follow up with Colby's lab results. Seriously, you aren't going to believe this. They want to REDO the platelet aggregation study. WTF, you're kidding, this is a joke, right? Nope, she wasn't kidding. Apparently some of the vials clotted, along with his lipids were high. For the love of all that is good and holy, can't anything EVER go right for this kid? Actually we have 2 choices. #1 - redo the study, #2 - don't redo the study and they will treat Colby preventatively before surgery as if he does have a bleeding disorder. I hate both these options. Isn't there a curtain #3? I was livid by the end of this phone conversation. I said, you know, I'm tired of these foul-ups. I'm going to have to think long and hard on this one, I'll call you back next week. This whole mess makes me nauseous. Everything leading up to this surgery has been chaos. Let's move on, I can't even think about it right now.      

Mom came over a few days and helped me get Colby's winter/summer clothes switched out. Colby has grown so much over the past year. New shorts and short-sleeved shopping trip, here we come. Last night Dad, Colby and I went to the Moose for dinner. My BFF Pam came and joined us, too. I have the best parents. The absolute BEST, hands down. Where would I be without them? Up Poop Creek for sure.

Not sure what Colby and I are going to do the rest of the day. He's back there getting his IPV treatment right now. I'll admit it, I've been lazy in setting up the eye gaze lately. So we need to do that for sure. If the rain stays away, maybe take him outside for some driving, which of course involves him spinning in circles and driving in reverse. The nurse gets here at 5:00 and I'll go to work then. What a way to spend a Saturday night, alone in a tiny office, in the back of the pharmacy in the basement, packing pills. Not to mention it stays about 20 degrees back there. Oh well, I guarantee I've had worse Saturday nights, just sayin'. Have a great weekend, blog readers. 

No comments:

Post a Comment