COLBY DID BETTER THIS WEEK THAN I DID, IS THAT A SURPRISE?

He did it! He did it! He did it! Colby made it through his 1st week of school, and we're not in Cincinnati Children's Hospital! Yippee. I went to school with the nurse and Colby the first 2 days, then let them fly solo on Thursday. Everything is great, so far. I like his teacher, so far. Colby seems to like his teacher, so far. Colby's nurse has done a wonderful job transitioning from taking care of him at home to riding the bus and going to school with him. After looking at his schedule for this year, and taking his physical stability into account, I want to change the times Colby attends school. Last year he went Mon-Thurs. The bus picked him up at 9:15, and he got home from school about 1:45. I want to extend his school week to Mon-Fri. Also want to see if Colby can hang in there and stay at school until 2:00 daily. All we can do is try. If it's too much on him, we'll cut back again. Of course I need a letter before any of this can happen. You can't wipe Colby's butt at school without having a letter and a meeting first. I called his pediatrician twice last week, but haven't heard back from them. This is odd; usually the pediatrician's nurse is Johnny on the spot. So I guess on Monday I'll call the pulmonologist instead, and see if they will write the letter. Colby looked so stinking handsome and grown up going to school. I was bursting with pride. He has his new fancy-schmancy blue glasses, and we gave him a faux hawk haircut last week. Still can't believe that stinker is in 6th grade. Just hoping and praying this school year goes better than last. It's certainly off to a good start! More of the same next week, please and thank you.  

Colby kicked ass this week. Me, eh, not so much. I've managed to come down with a head cold/sinus gunk. Feeling better now, but a couple days ago I was miserable. Crawled into bed at 9:30, clothes and all. Also this week have had a run-in with Apria. Wow, that's a shocker, huh? They tried to call and tell me that Colby's IPV machine wasn't approved by insurance, and that our options were #1-Apria needed my credit card number, and they would charge $1519.16 per month for the IPV rental, or #2-They would need to come and pick up the machine. Can you believe that stupid shit? Keep in mind we've had Colby's IPV machine for a year now, since August 2012. Holy hog balls, I went ballistic. I've put up with a lot of crap from Apria. I mean A LOT. They are the biggest screw-ups I've ever had the displeasure of dealing with. But now, it's personal. You don't call and threaten to take ANYTHING away from my son, especially a piece of life-saving equipment that he has been using now for a whole year! Just blogging about it makes me furious. So believe you me, I've been on the phone and writing letters to the wonderful, fabulous asshats at Apria and Cigna trying to get this straightened out. And they will here from me, every day, until this issue is resolved. I'm in full Mama Bear mode, and trust me, somebody from Apria and Cigna WILL get this mess fixed, ASAP.

Colby's solar system wall mural is in. Now I just have to find some help getting it up on the wall. Because if I do it, it goes up with Scotch tape. Not a wallpaper hanging expert, never claimed to be. His U of L decals are in, too. May work on getting those up on the wall this weekend. Also working with the speech therapist to try and get Colby to use his eye gaze more. I would love to see him turn the corner with it, and use it more as a communication tool than a toy. It's going to take a lot of extra work on my part, I do believe. But hey, what else am I doing around here, right? There are also a couple of Colby's nurses who would be glad to help.

Okay, that sums up our week. The nurse is getting ready to head out. I'll read Colby a few pages of The Hobbit. Then I'm taking my NyQuil and it's nighty-night time. More blogging soon. Have a great weekend everyone.