Looks like we're going through with Colby's infusion here at
home. At least that's what Endocrinology is telling me, so apparently they've
agreed to it. They've contacted the home health agency that does Colby's port
flush to arrange for them to do the infusion. The medication used for the
infusion has to be shipped directly to us from a specific pharmacy, per
insurance, and the infusion may require a pre-authorization. But that shouldn't
be a problem. Sounds like the Endo nurse is on it. I'll follow up with her in a
couple of days to check the progress.
I've been in contact with Colby's pulmonologist. Would
really like to know exactly what type of surgery he's having in 79 days! But
who's counting, right? The pulmonologist and ortho surgeon are meeting
Wednesday morning, so I guess I'll have an answer by the end of the week. I
started wondering if they change the type of surgery Colby has, does that mean
the surgeon will or won't change and the date of surgery will or won't change?
Hopefully I'll have those answers by the end of the week, too. Flip, this
surgery will be the end of me before it's all said and done. They're coming to take me away ha ha. They're coming to take me away ho ho hee hee ha ha.
Finally got my taxes done. Well, let me rephrase that. My BFF
Kim came over last week and did my taxes for me. Glad to get them done, and am
pleased with my refund. I'll pay her with the usual payment, a fried pork chop
and mashed potato dinner and/or a trip to Homemade Pie Kitchen. She's way
better than H&R Block, and much cheaper, too. Thanks, Kimmie, for taking
the time to do my taxes, again.
Today was Colby's 1st day back to school after Spring Break.
He had a crappy break now that I think about it. Our only venture was a 2-day
trip to Cincinnati
for doctor appointments. That hardly counts as a super duper fun road trip. We
tried to get together with another SMA family over the weekend, but it wasn't
meant to be. Just too darn cold that day. The activity we had planned was
outside, and the weather wasn't cooperating. So yeah, Colby's Spring Break
pretty much sucked. Sorry about that, kddo, but we had to do what we had to do.
Want to hear Colby's very punny joke? I bought him a
joke-a-day calendar for Christmas. For the most part, they're horrible jokes.
Not funny at all, but every now and then one is good. So here's his very punny
joke for last Saturday: "I used to have a fear of hurdles, but I got over
it." Pretty cute, huh?
Okay, I'm finally starting to calm down some after today's
you're-getting-on-my-last-nerve phone calls. I think the giant glass of
chocolate milk I just chugged down helped. What is it about chocolate milk that
soothes the soul? Or is it only my soul it soothes? Either way, it was a darn
good beverage-guzzling experience. More blogging when I have more to
report/gripe about. That's all for now. Later, taters.
No comments:
Post a Comment