COLBY UPDATE

We weren't able to go swimming today, with there being 8 or so inches of snow in the parking lot and all. That's a bummer, because Colby sure does love his swimming. If only he had half that much enthusiasm with school/academics. I'm telling you folks, that child flat out does not give 2 flying flips about anything related to school. He doesn't want to learn new vocab words. He doesn't care to learn math. Doesn't even try to send e-mails or pay attention during a science experiment. He completely shuts down whether it's at school, here at home with a homebound teacher or me. He simply ISN'T going to do schoolwork. His IEP meeting is coming up soon and I'm just going to say, yeah, keep the same old goals we had last year. Swimming to Colby, super fun. Schoolwork to Colby, pure torture.

As I've blogged before, Colby has been having some skin issues. In particular his left ear and his bottom. We'd taken him to Cincy Children's to Wound Care to see what they had to say about these problems. Last week I was so excited. I thought Duoderm was going to be the solution for the sore on Colby's ear. It looked 95% better for several days, and then boom. The next day his ear busted open and was bloody again. Rage. Fury. Irritation. Overall it's better, but still not healed. His bottom looks much, much better. We've been lathering on barrier cream with every brief change. Also every hour turning him up on his left side, then onto his back, then to the right side, then to his back. Repeat. We're flipping that boy like a pancake, and it's working. Now if we could just find the solution to that ear!

Want to hear the good news about nursing? Too bad, I don't have any. We've had yet another nurse quit. This one gave one whole week's notice. I know this is an ongoing problem with many, many other SMA families. I hear about it all the time on Facebook. It's just so frustrating. The nursing agency was quick to find a replacement. We'll see how it goes. Actually Colby and I have had the best time the last couple of days with no nursing. The bad weather caused the nurses to call off, and that was just fine by us. I got to sleep in until 7:30 both yesterday and today. Aaaaah, sweet, wonderful sleep. Colby and I spent the whole day yesterday in our pajamas. I got him up in his wheelchair on my own using the Hoyer lift. Made him work on his vocab words for school. That was a waste of 20 minutes. Both days I'd give him his meds at 8AM then cuddle up beside him for a few minutes. It was so wonderful. Just a few precious, sweet, quiet moments with my sweet boy that we don't seem to get very often.

Colby's high school friends came over last week and educated us on all things Star Wars. I'm clueless about such matters, but these boys are all into it. So next time they come over, we'll be having movie day so they can watch Star Wars with Colby and tell him all about it. I have no idea which movie. Doesn't matter to me, it's not my thing. But I loved watching them talk to Colby about something teenage boyish. They were telling Colby their favorite characters, showing him pictures. I have no idea if Colby will like the movie or not. We'll see. Time for Mama to pop up some popcorn and make cookies for movie day!

That sums up what's new with kid lately. I'm getting sleepy and have to work tomorrow. More blogging soon.