Friday, March 13, 2015

COLBY AND HOUSE - What else would I be blogging about?!

You already know what I'm going to say. Sorry it's been a while since I've blogged, been really busy. Well, it's true! Going to get in this blog update before hitting the hay. To use a friend's quote, I am one tired tater!

Sweet Boy: Colby got his Zometa infusion last week. Luckily we can do it here at home instead of having to go to Cincinnati Children's. He had 2 side effects from the infusion, fatigue and low potassium. He actually took some naps last week, which is very unlike him. The day he got the infusion he took a 3.5-hour nap, wow! Actually his potassium was a bit low to begin with. The low-end range is 3.5, Colby's was 3.3. Going to have to figure this out. But then his labs after his infusion showed his potassium went down to 3.2, then to 3.0. We have him on a potassium supplement and they will come draw labs again next week. Not liking this development at all. He acts okay, but I'm a bit freaked out about it. The kid has enough to deal with, and I want to get this potassium issue resolved for good.

Colby started back to school yesterday. He has been on homebound schooling since the first week of January. I pulled him out of school because of the flu and cold weather. We started out slowly, just Thursday and Friday this week. He did awesome! He jabbered, and jabbered, and jabbered yesterday from the time he got up until the time he went to sleep, so I think he was super excited to get back to school. Probably super happy to put some distance between him and me. Can't really blame him. I do have a tendency to hover around him and kiss on him 1000x daily. Can you blame me? Have you seen that child's beautiful, cute, sweet, handsome face?!

Mi Casa: Since the big demo, everyone has been asking what's new with the house. Lately the weather hasn't exactly been cooperative. Last week we got a foot of snow and this week lots of rain. But we have done a few things. Went and picked out the color for the new roof. Red, by the way. After demo, we noticed another layer on the kitchen floor. Are you freaking kidding me? Well, it's gone now. We took off a layer of subflooring stuff, then there were green and cream colored tiles, then some masonite layer under that. Then finally we got down to the original hard wood floors. We did have professionals come in and take out the chimney from the top down to the roof line. Now it's up to us ordinary, non-construction type people to get down the rest of it. Hey, guess what, bricks are heavy! About 5 or 6 of those in a bucket and that's enough to haul out to the dumpster. We'll work more on that over the weekend. Still working on finalizing a floor plan. Met with the contractor this week and feel much better about some things. I've been working on a grant that will hopefully pay for an overhead motorized lift system for transferring Colby. This would make a huge difference for us if we can get this fancy-schmancy lift installed, both for Colby and for his caregivers. It would make all our lives easier. So fingers crossed I can schmooze/convince the review committee to give us this grant, because if not I certainly don't have an extra $14,000 right now to get one installed!

Little ole me: I had a cold for 2 days last week. I was smart, not stubborn like the last time I started feeling ill, and started taking care of it immediately. Went and spent $34 at Kroger on Zicam, Emergen-C, DayQuil, NiteQuil and cough drops. Tried to drink extra water and rest the best I could. I was scared to death of giving it to Colby. I had no choice but to be near him. Because of the snow, we went a day without nursing. So when I was in Colby's room I wore gloves and a mask. Went on a sanitizing frenzy. Luckily he didn't get sick, and I was able to kick it fairly quickly. I think when Colby's at school it's much harder on me than it is on him. I miss him terribly when he isn't here. The apartment is so quiet it's almost scary. No vent running, no jabbers, no Spongebob on TV, no nurse doing stuff or making chit chat. Just me, myself and I. Alone with my thoughts. That's never good, haha.

Okay, that's a quick wrap-up of what's been going on around here. More when I have time. Gotta get those bricks in the dumpster first!

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