Wednesday, April 8, 2015

EASTER AND SPRING BREAK AND PICS AND STUFF

We had a fabulous Easter weekend. Colby's dad and stepmom came over Saturday morning to color eggs with him. We headed out to Grandma and Grandpa Kenny's at 2:30ish. Started unpacking the van and getting us settled for the weekend. Hadn't been there 15 minutes and I realized I forgot something. I could have crapped my britches. I NEVER forget Colby's important stuff. Never. That's why I have a list for the love of corn! I remembered to bring the humidifier for Colby's vent, yet somehow it didn't have a water chamber attached to it, meaning it was completely useless the way it was. Uuuugh. Poor Mom and Kenny had to drive over to the apartment and get the chamber, and I stayed at their house with Colby. I'm still kicking myself in the pants. After that fiasco was over, we made a bunny cake and hung out the rest of the night. Their house is not exactly accessibility friendly (steps to get inside, sunken living room, narrow hallways) but we managed. Barely, but we managed. I think all of us need IcyHot patches, massages and muscle relaxers after moving Colby's big butt around for two days.

Sunday morning we were up, ready and at Easter church service 10 miles from Mom and Kenny's at 10:30! We rock! Even got there a few minutes early. My stepbrother and his family were there, too. Church was “crowded” this year, 22 of us. That's a huge attendance for their church. Of course 8 people were our family, but that's beside the point. After church was Easter lunch. Ham, potato salad, side dishes, bunny cake. Colby got to spend some time with his cousins. Grandpa started teaching us to play Rummikub. Colby thought better of it and was napping within 10 minutes of us starting to play. He was zonked. Heart rate was in the low 60's and he had one eye half open. A sure sign he was sleeping peacefully. Okay then, we'll just continue playing Rummikub without you, sleepy boy. After lunch was egg hunting time. My sister-in-law had tons of plastic eggs filled with candy. Good stuff – Jolly Ranchers, Laffy Taffy, Twix, Rolos. She hid them all around the yard for the girls, and for Colby she hid them up and down the driveway so he could drive to them in his chair. Well, that was our theory anyways. He wouldn't do it. Simply would NOT do it. He would drive his chair forward a few inches, stop. Turn right for a bit. Stop. Go backwards for a few inches. Stop. You get the idea. No matter who encouraged him or what we said, Colby would not drive towards those Easter eggs. Seriously, if Laffy Taffy doesn't get you motivated to do something, nothing will. So his cousins collected his eggs for him. Pitiful, Colby, just pitiful.

Spent the night again Sunday, and came home Monday around 2:30. Mom followed us over and helped me get Colby out of his chair and unpacked. The packing and unpacking for Colby is a pretty big job. Okay, actually it's a huge job, and I really appreciate my mom helping me get settled once we got back here. My boss at work had called out sick. Apparently there is a nasty virus going around the pharmacy, and one other coworker has tested for flu. The flu?! In April?! Good grief. So when the night nurse got here to stay with Colby, I went in and worked for a while. Wasn't too thrilled with it, but I'll be glad next week when I get my paycheck. Colby is on spring break this week. I had envisioned all these fun things we were going to do here at home. Clean out his toy box. Use adaptable switches and get them all working for him. Use eye gaze for fun stuff like playing games on the internet. Want to load some pics and videos on eye gaze so Colby can show his friends. Well, haven't gotten to any of that quite yet. And I'm working today so it's doubtful much extra will get done. All work and no play...

We did take Colby swimming yesterday, which of course he loves. That was fun and enjoyable for him. Gave him a bath last night. I went up to the house and took some pictures in the basement. We have some water leaking in during heavy rains. I'm thinking once we get the gutters fixed and cleaned out, that will help with the water situation considerably. But we also want to go ahead and somehow waterproof the basement. My friend took the pics and is going to talk to a waterproofing company to maybe get it donated or at a discounted price. It never hurts to ask!

The nurse will be here in 10-15 minutes, and I need to finish getting ready for work. Here are some recent pics. Sure do love my new camera. I've become quite the shutterbug. More soon, peeps. 

Colby's ear looking great:














Colby's ear looking shitty 3 days after above pic was taken. So frustrating:














I really don't think he could get any more handsome. Easter Sunday 2015.



















Bunny cake, after we made it and I did surgery on it. First attempt looked a little creepy. 











Grandpa teaching us to play Rummikub:















Beautiful tulips at our beautiful house. I want to move so very badly! Can't happen soon enough!



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