We had a fabulous Easter weekend.
Colby's dad and stepmom came over Saturday morning to color eggs with
him. We headed out to Grandma and Grandpa Kenny's at 2:30ish. Started
unpacking the van and getting us settled for the weekend. Hadn't been
there 15 minutes and I realized I forgot something. I could have
crapped my britches. I NEVER forget Colby's important stuff. Never.
That's why I have a list for the love of corn! I remembered to bring
the humidifier for Colby's vent, yet somehow it didn't have a water
chamber attached to it, meaning it was completely useless the way it
was. Uuuugh. Poor Mom and Kenny had to drive over to the apartment
and get the chamber, and I stayed at their house with Colby. I'm
still kicking myself in the pants. After that fiasco was over, we
made a bunny cake and hung out the rest of the night. Their house is
not exactly accessibility friendly (steps to get inside, sunken
living room, narrow hallways) but we managed. Barely, but we managed.
I think all of us need IcyHot patches, massages and muscle relaxers
after moving Colby's big butt around for two days.
Sunday morning we were up, ready and at
Easter church service 10 miles from Mom and Kenny's at 10:30! We
rock! Even got there a few minutes early. My stepbrother and his
family were there, too. Church was “crowded” this year, 22 of us.
That's a huge attendance for their church. Of course 8 people were
our family, but that's beside the point. After church was Easter
lunch. Ham, potato salad, side dishes, bunny cake. Colby got to spend
some time with his cousins. Grandpa started teaching us to play
Rummikub. Colby thought better of it and was napping within 10
minutes of us starting to play. He was zonked. Heart rate was in the
low 60's and he had one eye half open. A sure sign he was sleeping
peacefully. Okay then, we'll just continue playing Rummikub without
you, sleepy boy. After lunch was egg hunting time. My sister-in-law
had tons of plastic eggs filled with candy. Good stuff – Jolly
Ranchers, Laffy Taffy, Twix, Rolos. She hid them all around the yard
for the girls, and for Colby she hid them up and down the driveway so
he could drive to them in his chair. Well, that was our theory
anyways. He wouldn't do it. Simply would NOT do it. He would drive
his chair forward a few inches, stop. Turn right for a bit. Stop. Go
backwards for a few inches. Stop. You get the idea. No matter who
encouraged him or what we said, Colby would not drive towards those
Easter eggs. Seriously, if Laffy Taffy doesn't get you motivated to
do something, nothing will. So his cousins collected his eggs for
him. Pitiful, Colby, just pitiful.
Spent the night again Sunday, and came
home Monday around 2:30. Mom followed us over and helped me get Colby
out of his chair and unpacked. The packing and unpacking for Colby is
a pretty big job. Okay, actually it's a huge job, and I really
appreciate my mom helping me get settled once we got back here. My
boss at work had called out sick. Apparently there is a nasty virus
going around the pharmacy, and one other coworker has tested for flu.
The flu?! In April?! Good grief. So when the night nurse got here to
stay with Colby, I went in and worked for a while. Wasn't too
thrilled with it, but I'll be glad next week when I get my paycheck.
Colby is on spring break this week. I had envisioned all these fun
things we were going to do here at home. Clean out his toy box. Use
adaptable switches and get them all working for him. Use eye gaze for
fun stuff like playing games on the internet. Want to load some pics
and videos on eye gaze so Colby can show his friends. Well, haven't
gotten to any of that quite yet. And I'm working today so it's
doubtful much extra will get done. All work and no play...
We did take Colby swimming yesterday,
which of course he loves. That was fun and enjoyable for him. Gave
him a bath last night. I went up to the house and took some pictures
in the basement. We have some water leaking in during heavy rains.
I'm thinking once we get the gutters fixed and cleaned out, that will
help with the water situation considerably. But we also want to go
ahead and somehow waterproof the basement. My friend took the pics
and is going to talk to a waterproofing company to maybe get it
donated or at a discounted price. It never hurts to ask!
The nurse will be here in 10-15
minutes, and I need to finish getting ready for work. Here are some
recent pics. Sure do love my new camera. I've become quite the
shutterbug. More soon, peeps.
Colby's ear looking great:
Colby's ear looking shitty 3 days after above pic was taken. So frustrating:
I really don't think he could get any more handsome. Easter Sunday 2015.
Bunny cake, after we made it and I did surgery on it. First attempt looked a little creepy.
Grandpa teaching us to play Rummikub:
Beautiful tulips at our beautiful house. I want to move so very badly! Can't happen soon enough!
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