DOING BETTER - I GOT THIS – I THINK

Yes, I've been a little down lately. Down, but NOT defeated. So how has this week been you ask? Pretty darn busy. That's how I usually say all our weeks are, but it's oh so true. Monday I worked. Tuesday we took Colby swimming. Tuesdays are bath night, too. Wednesday we took Colby to the matinee at Derby Dinner Playhouse to see Peter Pan as part of his birthday present. Neither of us had ever been. It was good, I think Colby liked the play. But man, that is a long day. We ate lunch, then there were 2 intermissions during the play. We didn't get home until 4:00. Thursday was a more laid back day, housework for me. Friday the nurse and I took Colby for a “real” hair cut at Great Clips. I mean come on, he's a teenager now and needs something better than the hack job I've been doing on his head for the last couple of years. Not much going on today. We have a new nurse here now. She's doing pretty good, but so help me, if she calls my son Cody one more time, there just might be some throat punching go down.

August is SMA Awareness Month. So, for the next 31 days I'll be sharing various crappy facts and lots of information on SMA. My family and close circle of friends have been familiarized with this sucky disorder to some extent for quite some time now. Know me, know SMA. But maybe I can teach somebody something new. Any information I share may convince someone to donate to research, which hopefully soon will lead to an effective treatment or even better, a CURE. Look at the green fact below - 1 out of 40 people carry the recessive gene that causes SMA. Think about that the next time you're at a ballgame, or church, or the movies, or anywhere there is a crowd of people. Start counting heads, and count to 40. In that group, 1 of those people has the SMA gene. Count another 40 people, again, 1 person in that group is an SMA carrier. And so on and so forth. YOU could be a carrier and not know it. I certainly didn't know I was. Colby's dad didn't know he was. He has 3 other perfectly healthy children older than Colby. Not trying to scare you - just something to think about. More fascinating SMA facts to come.