Well, I should be going through this
mountain of mail that has piled up over the last couple of weeks. It
looks daunting, indeed. Instead I've been goofing around on Facebook
and totally not doing what I should be doing. Imagine that!
Sent Colby to school today. He is
better, not back to 100%, but much better. His secretions are still
yellowish but he seems to act like he feels fine. A big determining
factor for how Colby is doing is how well he tolerates sitting up.
Saturday he sat up for 2 hours and yesterday he sat up for a little
over an hour, both times with no problems. So I thought he would do
okay at school today. When the nurse was doing his CoughAssist
treatment, Colby coughed up a large hunk of something. His oxygen
dipped down to 49. Yes, it happens that quickly! But then as soon as
the nurse suctioned his trach and removed it, his oxygen stabilized.
Since then he's been just dandy. I assume an oxygen drop like that
wears Colby out, so I strongly encouraged him to take a nap today. In
other words, I turned off the TV and lights, scooted him over in his
bed, and curled up next to him. I don't care if he's 13 years old,
you're never too old to snuggle up with your mama! We had 25 minutes
before his afternoon respiratory treatment was due. Perfect for a
quick nap. Nope, not that kid.
Had a follow-up endocrinology appt
today. I had my blood drawn at my dr appt last month with my family
doctor. Of course they were supposed to send the results to my
endocrinologist. But did they?! Noooooo. Family doctor had called to
say my levels were high and to cut back on my levothyroxine dosage.
Uh no, I'll follow my endocrinologist's advice, thank you. So as soon
as she gets the results, she'll call and let me know if we need to
make any changes. Seems like we've been constantly changing my dosage
since having my thyroid removed. I just want my energy level to
return halfway to normal. Tired of being tired all the time. Need to
get more focused on taking better care of myself. Yeah sure, I'll
squeeze that right in. Eventually it's going to have to be a
priority, but I swear, right now I can't handle the thought of one
more thing to keep track of and/or do.
They came today and finished hooking
up/turning on the whole house generator. Oh my goodness, I'm so
relieved to have something like this as a backup for Colby. With all
of Colby's medical needs, a backup generator is pretty much a
necessity. At the apartment, if it started storming or icing, our
backup plan was plug everything up and just pray the electric stayed
on. The generator was paid for by the Molly Johnson Foundation, and
Corrigan Electric donated the labor for getting it installed and up
and running. What piece of mind we'll have if the electric goes out!
This has greatly approved our quality of life and is much
appreciated.
I'm at the kitchen table typing this,
listening to Colby's nurse talking to a new nurse who is
training/shadowing here. Yes, I agreed to letting yet another nurse
come here and help with Colby. Honestly, it's against my better
judgment. I counted it up. In the last 12 months, we've had 14 nurses
come to our home to take care of Colby. And of those 14, do you know
how many are still with us? The original 2 we had at this time last
year. Holy shit on a shingle, are you freaking kidding me?! I don't
know if she'll work out of not. Honestly, I'm just not in the mood to
deal with someone else taking care of Colby at the present time.
Blah. If there wasn't so much to get done around here, I'd probably
tell the nursing agency to stick it where the sun don't shine.
We'll be scheduling the house closing
very soon! In a matter of a couple of weeks, I'll be a homeowner
again. So exciting! I'm in the process of shopping around for
homeowner's insurance. We'll also get the utilities changed over to
my name sometime this week. Baby steps. Slowly get there, but we are
getting closer to being moved, settled and officially homeowners!
Okay, now that I've wasted some time
blogging, think I'll go watch some of the Bengals game. Maybe at
halftime I'll get some mail sorted. Looking doubtful! Very doubtful.
But you never know, I may get a burst of energy to get something
done. Bye for now.
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