TGIF AND HAPPY MARCH MADNESS

Trying to play catch-up today. I'd been doing so good on exercising regularly, then starting a couple weeks ago that changed. Trying to get back on track. Walked 40 minutes this morning. Not exactly marathon training but hey, 40 minutes is better than 0 minutes. Laundry, it never ends! There are only 2 of us in this house. How can we have so---much---laundry! Did a load yesterday, on my 2^nd load today, and have a load waiting. Bleh to sorting, pretreating, washing, drying, folding and putting away clothes. I swear if they made disposable clothes I would buy them! Now for blogging! Haven't blogged in a while and feel it's much overdue. So here's what's new in our little corner of the planet.

Colby was having some high heart rate issues. I don't mean off-the-charts high, but rather, he was not sleeping well. When he is sleeping, his HR should be in the 70's, sometimes even the 60's. For several nights in a row, Colby's HR was averaging 115 throughout the night. I know many SMA kiddos wake up through the night needing to be turned, suctioned, etc. Luckily that just has never been Colby. He usually sleeps through the night. But recently, he would sleep fine, then at various times of the night set off his HR alarm. Sometimes it would beep a few times and be done. Other times his HR was up and would stay up for well over an hour, despite me trying all my mama tricks to settle him down. This high HR stuff was freaking me the freak out! I mean I hit total panic mode. We went through several nights where either of us got much sleep at all. With SMA and Colby being nonverbal, you just never know what to do. I didn't want to overreact but then again, I certainly didn't want to under-react. I was at my wit's end. Long story short, he seems to be fine now. He has slept well the last few nights. We have started setting his high HR alarm at 100. That way I'll know right away if he's waking up and/or having issues. Hoping that mess is over and done!

So, with interrupted sleep and added stress and worry, my migraines paid me a visit. With a vengeance. I felt like absolute hell for a couple of days. A frazzled zombie with a screaming headache, that was me! Once I realized Colby's HR was high only at night, that took away a lot of worry. I can deal with sleep issues, but not cardiac issues. You just NEVER KNOW with SMA. You can't ignore any symptom or change in behavior with our kiddos. They are simply just too medically fragile. I've been watching and hovering over that kid more than usual! If he could reach up and throat punch me, I'm sure he would! Now that he seems to be over whatever it was he had going on, and we've been able to get more solid sleep, my migraines have gone bye-bye.

Funny eye gaze story. The principal at Colby's school paid his classroom a visit. So what does Colby do? Looks at his eye gaze and says, “shut the front door.” Yes, I put that saying on there trying to encourage Colby to use his eye gaze more. But Colby, really, did you have to wait and say that when the principal is in your classroom?! He said it not once, but 3 times. Yes, that child is mine. No doubt. Good thing I've never programmed cuss words on that thing!

We still absolutely love, love, love our new home. Love it! We moved in back in November. Did the initial unpacking, put stuff on the walls, etc. Now comes the 2^nd wave. We're having an open house soon. We want all those who donated to our home to come see how beautifully it turned out. Our super-fine, world's greatest carpenter is working on a few items. Getting the garage finished is the biggie on the list before open house. We still have the original, broke, uglyass garage doors on the garage. Plan is to remove the concrete support in the middle, take out the 2 old doors and replace it with a single, bigger new door. So of course there's framing and construction that has to be done before the big door can be hung. So Charlie (world's best carpenter ever and my super hero) has been getting the framing ready. The door has been ordered and that project should be done by open house. Also trying to do some further decorating, patching the yard where the grass didn't come up, etc. If we didn't do a single thing, the house is still beautiful and everyone will be amazed at the transformation. But you know, I'm a chick and you know how we can be. Everything needs to be just so for the open house. As long as kid sleeps and the migraines stay away, I should be able to get some stuff done in the next couple of weeks. Around watching basketball games, of course. Nothing is getting in the way of my March Madness.

Speaking of which, time to wrap up this blog and get to watching b-ball. Go my Hoosiers go!!!!