Tuesday, August 30, 2016

BETTER NOW THANK YOU

Thank you to my sweet and thoughtful family and friends who text me, sent me FB messages or called me to make sure I'm ok. I am. I've talked myself down off the ledge, so to say. Yesterday and today have been much better emotionally for me. Just felt like I had to get it out. That if all those horrible feelings stayed inside, they would fester and I really would have a meltdown. But I didn't. Crisis averted. Moving on.

I think I might have some good news. Remember how I went ballistic when Colby's primary insurance denied his backup vent. I'll say it again, I mean really!! Who is that freakin' stupid to deny someone a life-saving, essential piece of medical equipment. OMG every time I think about it I get pissed all over again. Anyways, it took about a month, but I think we've made progress. The lady at James Medical sent me a copy of a letter from United Healthcare saying the backup vent, pulse/ox machine and pulse/ox probes that were denied since June have been approved until November. So now she can rebill for everything and UHC “should” pay for these items now. I'll believe it when I see it. But she seems optimistic so I guess I should be too. We also got Colby's new alternating pressure mattress yesterday. So maybe all the work I did in August to get what Colby needs is paying off somewhat. The next item to tackle is the repairs for Colby's power chair. It is literally being held together with duct tape! Gotta love that duct tape. I guess it's UHC's new policy to deny everything up front, then request a peer-to-peer conference with one of Colby's doctors and one of their medical specialists. Really?! REALLY?! That's what they did with the backup vent, now it's what they're doing with the wheelchair. Yeah, like the pediatrician knows what's wrong with Colby's wheelchair?! He just signs the freakin' order. So now I will call the pediatrician, tell him what to say, then he can call UHC and schedule this overly stupidass peer-to-peer call. Here's another one of Colby's doctors having to take time away from patient care to make this stupid call, for something that should have been approved easily and months ago. Don't even get me started. It's infuriating.

Got Colby ready for swimming today. Drove to the pool. Doors were locked and there were no cars in the parking lot. Uggggh. One of two things happened. Either there was an “incident” in the pool earlier that day and they had to close. Or there is a week every year that the pool is closed for maintenance cleaning. Either way, there was no swimming for sweet boy today. Decided to take him to the Humane Society to start talking about getting a pet. They had lots of cats and kittens to look at and pet, but no dogs available. Strike 2. If and when we do get a pet, it'll be a dog. I really wanted to start out with a cat, but one of Colby's nurses is highly allergic. He said he would have to quit if we get a cat, so that was the end of the cat discussion. The earliest I would consider getting a dog would be Christmas. Maybe even next Christmas haha. I'm in no hurry because let's face it, I'm going to be the one responsible for this critter. Plus I absolutely love our house exactly the way it is. First time a puppy or dog chews on the new furniture or craps on the floor, I'll flip. We're just starting the discussion. Yep, it's official, I have lost what few marbles I had left.

That's about it for now. The nurse is doing a great job taking Colby to school. She usually comes home frazzled a couple times a week. I just smile and say yeah, it can be a challenge sometimes. But overall she's doing fine. Plus Colby doesn't throw a fit every day, so that's a bit of progress too, I suppose. Time to tuck in kid for the night. School day tomorrow!

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