Colby turned 15 yesterday. Can you
believe that? How amazing is that? I mean really, how incredibly
awesome is that boy? First he and 5 of his friends went bowling at
King Pin. That was quite a sight to see. There was a 5-year-old who
had never bowled before, a second grader, 2 kiddos in wheelchairs and
Colby's St X buddies who are now juniors in college. Actually I think
everyone had a great time. I know Colby did. We only had time to bowl
one game and he started crying after it was over. Silly boy. Then we
all headed back to the house for cake and ice cream with more family
and friends. Colby was showered with attention and got tons of nice
cards, gifts and birthday cash. Yeah, it was a great day. For all
those who helped me prep for the big day, bowled, came to the party
or wished Colby a happy birthday, thank you so much. Colby turning 15
is a really, REALLY big deal, and I appreciate you caring and helping
to make it special. Did I mention it was Colby's birthday? Did I
mention it was a really big deal?
Today I was determined to rest and
relax. Not exactly my forte but I tried and pretty much succeeded.
Colby got some cool items for his fish tank so we got those in place.
The weather wasn't disgustingly hot so the nurse and I took Colby for
a walk around the block. I tried to encourage Colby to use his eye
gaze. He's found a new set of words and is saying different things,
but still not forming sentences or communicating his needs. The
battle continues.
Tomorrow it's back to reality. Colby
has FINALLY been approved for the Home and Community Based Waiver.
I've been working on it since freaking November. It was a giant pain
in the fanny. But anyways, the main reason I wanted this waiver was
so Colby could get briefs and chux pads. We've had to beg, steal and
borrow briefs for months. Colby got his first shipment this month.
Fingers crossed we continue to get shipments monthly. One of the
benefits from this waiver is also some respite hours. We use a
different agency for briefs and respite than we do for Colby's full
time nursing. It's confusing I know. The nursing agency hasn't found
a temporary replacement for the nurse who broke her wrist. She'll be
out another 4-6 weeks. Bleh. So the waiver agency is sending out a
nurse tomorrow to work one day. This should be interesting. Usually I
wouldn't do it, but I'm up for giving it a shot. This nurse better
not be a stupid douche bag, that's all I've got to say. I'll also
call our regular nursing agency, Maxim, to see if they have someone
to cover for the nurse who is out. The never ending nursing drama.
But for now, right now, I'm still
enjoying the weekend. Colby and I need to discuss how he's going to
spend his birthday money. I'm thinking some new school clothes, maybe
some supplies for the rabbit. I'm also thinking of getting Colby an
Echo. We could program statements on his eye gaze so he could
communicate with Alexa. Not sure if it would be a bust or not, but we
have to keep trying on eye gaze. I refuse to give up on Colby using
it effectively to communicate. Lord, grant me patience.
Okay, that's the update for now. Again,
thanks to everyone for making Colby's birthday the special day he
deserved to have. I sure do love that kid. And I know many of you all
do, too. We are so blessed to have you in our lives.
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