Greeting from our casa! Colby is
getting his IPV and CoughAssist treatments done. I'm watching Ninja
Warrior and eating a Lean Cuisine pizza. Aren't you jealous you're
not here right now to party down with us? Here are some updates.
We had a good weekend. My brother,
sister-in-law and niece were in town for my niece's cross country
meet. So they came over afterward and we took our mom out for a
belated birthday lunch. I suggested we go to Orange Clover, a cute,
yummy, locally owned restaurant. Would've worked out perfect except
they are CLOSED on the weekends. What the hell?! What restaurant is
closed on Saturdays. Our second choice was Buckheads. Can't go wrong
there. Good times were had by all. Then when they left to head back
home, I went into work. Packing pills on a Saturday night, oh what
fun. Yesterday we took it easy for the most part. I took Colby for a
nice long walk. Let him practice driving his power chair.
Unfortunately he was in more of a turn in circles mood. His choice I
suppose.
The nursing situation stinks even more
than it did last week. Broken Wrist is still out and now Nurse Baby
Daddy is on paternity leave until Sept 12. We had one fill-in nurse
who was working with Colby 2 shifts per week. Found out today she's
cutting back to 1 shift. So there's another opening. And the school
system's agency still hasn't found a nurse to go to school with Colby
until Broken Wrist returns. They asked a nurse who had done home
health nursing with Colby for years to do it, but she said she didn't
want the job. Not sure what happened there, but I'm not worrying
about it. If she doesn't want to do it, we don't want her. So we
started the process for Colby to go on home hospital until he is able
to start school. This means a teacher will come here to the house
twice a week to work with Colby. With any luck, that will get started
this week. Actually I think not having nurses here all the time for a
couple of weeks is a blessing. Colby and I enjoy our one-on-one time.
I'm a little more relaxed without any employee in the house for sure.
And on the weekends I can sleep in until 7:50AM! Yes! As long as I
can get Colby where he needs to be and work my part time job, we're
good.
Took Colby to the dentist last
Thursday. I was a complete freakin' wreck. Actually I was a nervous
wreck since I made him the appointment months ago. I'm one of those
people who hate going to the dentist with a passion. I despise it
with every fiber of my being. Probably explains why I hadn't taken
Colby in 6 years! Hey, don't judge, we've been busy haha. Last time
he went to the dentist it was a disaster. He cried and cried. His
heart rate shot up to around 160 and we had to bleed 2 liters of
oxygen through his bi-pap the whole time. This time was the complete
opposite. It was a breeze for him. And trust me, that hygienist was
scraping the you-know-what out of Colby's teeth. I was amazed at how
well he did. Seriously, why do I ever doubt this child?! He took it
like a champ. A stud. Owned that teeth cleaning like a boss. Kicked
ass and took names. The looks he gave the hygienist were priceless.
The dentist recommended we take him back in 3 months for another good
cleaning, then hopefully we can move to every 6 months.
We went to Colby's school today so he
could meet his teacher. Yep, another new teacher for Colby. His
teacher from last year has moved to the post-high program. Colby's
teacher is especially new. This is her first year teaching. Took
Colby's eye gaze so she could see Colby working with it. The first
words he said were, “bedroom, bedroom, television.” I said that's
Colby's nice way of saying he doesn't want to be here and wishes he
was home, in his bed, chilling and watching TV. That kid! I think she
might also be the teacher who comes here to do home/hospital with
Colby, and that would be awesome. That would give her a great
opportunity to get to know Colby. So maybe this whole can't go to
school right now might turn out to be a blessing.
Time to tuck in sweet boy. Swimming and
bath time tomorrow.
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