OCTOBER OCCURRENCES

Hey, guess what! You're going to be shocked to read this, but we're short on nursing. Yeah, can you even believe it?! Colby has a nurse who works the weekend evenings, Sat and Sun from 4p-12a. She needs surgery and will be out for the next 4-6 weeks. I'm not going to even attempt to get her shifts filled. We're darn lucky to have a weekend nurse, and I'm pretty sure the nursing agency will have trouble filling the shifts. Screw it. I have plans to go to a Halloween party on the 28th. One of Colby's other nurses said she would work that night so I can go out. Other than that, Colby and I will just spend some QT together. As one of my friends said upon finding out we'll have another nurse out, it's one step forward and five steps back with the nursing situation. When nurses call off it doesn't even phase me anymore. I'm actually more shocked when they all manage to show up for their shifts in a week. I have no control over it, so I better learn how to deal with it.

Colby started attending school on October 2^nd. That means we're both getting up earlier, and the nurse has to be here earlier in the mornings. We're slowly adapting to the new schedule. And I've decided to send Colby to school all 5 days a week instead of 4. I really like his teacher this year. She has already learned how to navigate his eyegaze. I think she sees potential in Colby and is also willing to push him when it comes to his extreme stubbornness. There's no way I'm taking Colby's swimming away from him, so we'll be doing that one evening after school. Hoping it doesn't wear Colby, and me, out too much. We'll see how it goes.

Spinraza injection #3 is done! Colby did as well this time as he did with the first two. One more loading dose on Nov 15^th, then he won't have another dose until 120 days, which is March 2018. Our appointment was at 6AM. Damn, that's early. I gave it some thought and decided doing an up and back trip would probably be easier than packing, loading, unpacking, unloading, repacking and reloading all of Colby's stuff. So we left at 4-freaking-AM last Thursday. Everything went smoothly. Colby and I both seemed much more at ease this time around. I don't take chances with him developing a lumbar puncture migraine, so I make him lie flat for 48 hours. He was not digging it! I could tell he was totally bored. Sorry kid, Mama's rules. It's a small price to pay to avoid complications from getting the injection.

We're getting excited for Halloween. I've been doing some decorating here and there as I've had time. I've decided my decorations are all too cutsie. Time to step it up and get some bigger, scarier stuff. Also need to decorate outside more. Okay, I don't know if I NEED to decorate more outside – I just really want to do it. If I had the time and money I'd turn this darling little bungalow into a creepy, scary, awesomely decorated house. Wonder if I could find a good price on a coffin somewhere...

So that's a little update. I'm working some extra hours this week so I figured I'd better blog while I had a little time to do so. You know, gotta make hay while the sun shines. More soon, as time and energy level allows.