GUESS WHO'S MAD, SAD, NOT AT ALL GLAD, AND FEELIN REALLY BAD?

That would be me. And Colby I'm sure. And anybody else who cares and loves him to pieces. We've had some scheduling frustration to deal with lately. It's enough to make you scream. Let me back up a little. Here's the good news: Colby's air pocket outside the lung (pneumothorax) is better, a lot better. The fluid pocket outside the lung (effusion) is better, thanks to the Lasix he's been getting twice daily. He was scheduled yesterday as an add-on for surgery to have the port placement and teeth pulled. We were told it would be after 3:00. Time just kept ticking by. Finally at around 6:00 they came and said Colby's surgery was cancelled. Apparently Dentistry said they couldn't work Colby in their surgery schedule. Had I known this, I would have said screw the teeth, just get in the port, as it is the priority. But it all got cancelled. I was soooo upset. Especially because Colby's x-ray yesterday was the BEST it has been this whole hospital stay. He was in great shape (or great shape for Colby) to get the procedures done. And the really sucky part is I couldn't yell at anybody! Damn! The docs here in the PICU tried very hard to schedule everything. They were frustrated, too. It wasn't their fault. They didn't know what was going on in Surgery Land. So to summarize, yesterday was a complete waste!

Here's the decision now. Get Colby's port put in, period! If Dental can come along and do their thing, fine. If not, they can go piss up a rope. We're tired of waiting on them and they're the ones who are jacking around with this whole surgery thing. Colby is, once again, on the add-on list for surgery tomorrow. Just hoping his lungs look as good tomorrow as they did yesterday. This waiting around is horrible. Yesterday just went on and on and on. I promised myself I would find something, anything, to stay busy today. I've watched some TV. Gave Colby a bath and changed his bedding. I've had to help a little more with his care because his nurse was just assigned another patient. That's fine with me. I'm getting ready to go through my mail\bills. That should tel you how bored I am.

The end. That's it. Sit around and wait for this dang surgery to get done. Hurry up and wait. Hurry up and wait. Livin' the dream that's for sure. I JUST WANT COLBY TO GET BETTER, GET THIS STUPID SURGERY DONE AND GO HOME. When I think of all the time we've wasted being here, it breaks my heart. I hate this for my parents. I know it's doubly hard on them, probably triple hard. I know they're exhausted and have lives of their own. Another reason we just need to get the heck out of here, get home and get on with our lives.