UPDATE FOR...WAIT A MINUTE, WHAT DAY IS IT AGAIN?!

I've been told it's Tuesday, right? You tend to lose track of time/days when your kid is in the PICU for days/weeks on end. Let me catch you up on "what up" around here. Colby was extubated Sunday morning at 10:20 a.m. Usually if an SMA kiddo is going to fail extubation it will be within the first 48 hours, usually the first 24. Don't know if you remember or not, but last hosp stay Colby had an extubation that lasted 22 hours. Ahhhh, we were so close, but he just couldn't do it and had to be re-intubated. So all of us around here were literally counting the hours, minutes, seconds to the 48-hour mark. We didn't give Colby as many cough treatments in the beginning this time, we didn't think he needed them. We didn't have a set schedule, just did what Colby seemed to need at that particular time. We were stuck to his bedside and constantly watched the numbers on his bipap machine, monitor, etc. One of my SMA mommy friends was nice enough to give up her entire Sunday to be with us. Thank you so much, DB. She helped fine tune Colby's bipap machine and was a huge emotional support. Little by little the minutes and hours went by. Long story short, this has by far been the easiest "E" Colby has ever had! Not the first little problem or bobble for him! OMG my kid is such a freakin' rock star, don't you agree? We are now 54 hours, 13 minutes post extubation. Colby has done an amazing job. For the first 48 hours, we did his cough treatments every 3 hours. Now that he's off the vent, I want to do his cough treatments, so the respiratory therapist and I tag team him. I run the CoughAssist machine, they do the suctioning. Cough treatments every 3 is exhausting for everyone, I'm sure especially for sweet Colby boy. First we put Colby's shaky vest on and let that shake him up for 20 minutes. Then we tilt his bed with his feet higher than his head, trendelenburg position, for 15 minutes. Then do the actual CoughAssist machine treatment, which takes 5-8 minutes I guess. So by the time all this faldy-raldy was done, there wasn't much time before the next one. I know some of you have called and sent texts over the last few days. Sorry if I didn't get back with you, please understand we've been super extubation busy!! Watching Colby's every breath, literally, and getting up every 3 hours to cough him is hard on a mama. So there are all sorts of signs Colby is better and we can all collectively take an exhale and we can think about getting home. We're able to take his cough treatments to every 4 hours instead of every 3.