It's halftime of the IU game, so I'll do a quick blog update. Actually there's not much to report. I've been working at the hospital so my "boss" can get some well-deserved R and R and go on vaca. I worked M, W, Th and today. Haven't jacked anything up, yet. Nope, haven't broke anything, yet! Even had to change the printer ribbon on the overwrap machine, which I've done only 1 other time in the 4 years I've worked there. I hate that freakin' overwrap machine. I call it "The Beast", and it is not my friend. But I did it! Lickity-split, just-like-that, no problems whatsoever. Working tomorrow also. Don't know what I was thinking working so much while Colby is off school. Oh wait, now I remember, I need the dang money! But I sure do miss kid when I'm there and he's here. I had plans to go out tomorrow night, but they've suddenly been cancelled. I'm thinking that's not the end of the world. I can come home from work, get comfy, watch the UL/UK game, and spend some QT with my sweet boy.
No cute eye gaze stories because Colby's eye gaze has not been cooperating lately. Well, that's not 100% accurate. I've also been pretty lazy in not hooking it up for him. Also been lacking in the putting on of the AFOs and hand splints department. Hey, don't judge me, it's Christmas break! I'm giving the boy a BREAK. I knew the eye gaze had been acting up and now I've seen it firsthand. It keeps freezing up and seems to completely have a mind of its own. We've submitted the paperwork for a new one, as Colby is due for a newer model. One that runs faster and doesn't freeze up, hopefully lol. The paperwork for that is floating around somewhere in Insuranceland and Medicaidville. Just give us the damn machine, because if you deny it, we'll appeal it, we won't give up, etc. Yesterday when I set up the eye gaze, Colby first said, "know--fast--go, go, go". Then he said a bunch of this and that, then the machine froze up. May try it again tomorrow afternoon.
So my SMA buddies and I are all in a tizzy over the newest, latest and greatest model of CoughAssist machine. Actually Colby has used this piece of equipment for 10 years and I have never seen an improvement/change in the CoughAssist until now. And wow, it's super duper special fantabulous and we MUST have one! Currently the CoughAssist is large, heavy, cumbersome and not portable, meaning it has to have power and does not run off its own battery source. Furthermore, it takes a special type of battery. To summarize, it's a giant pain in the ass to make it portable because you need the big machine AND the backup battery. The new one is smaller, more lightweight and is portable/runs on a charge. Oh yeah baby. This new CoughAssist would make taking Colby anywhere so much easier. I know the RT we talk to at Apria is on vaca this week. But as soon as I get in contact with her, we're getting one. Some way, some how. Even if insurance says no and Medicaid says no, then I'll do fundraisers to get the money and will buy one out of pocket. Want it. Need it. Gonna get it, end of story.
The game is back on. Need to get back to cheering on my Hoosiers. Colby's nurse just got done giving him his IPV and cough treatment. Want to get my boy tucked in for the night. Later, taters.
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