POST MOM'S DAY/CINCY LABS UPDATE

Started Sunday with some yummy Bailey's in my coffee. I thought what the heck, it's Mother's Day, I get what I want. Don't judge me. Gave Colby his morning meds, then decided to go ahead and get my shower. Heard this noise and I was like, what the crap is that? It was Colby's feeding pump, but of course I had turned that off and disconnected it to give him his meds. Right? Jump out of the shower, wrap up in a towel to go check it out. Sure enough I had disconnected the feeding bag from Colby's extension, but did NOT turn the pump off. So there was icky, stinky, thick, nastyass foodstuff oozing on Colby's blanket, arm and Dream Pillow. I was tempted to ditch the coffee and just stick with the Bailey's, but I didn't. Wiped up the mess in Colby's bed, got back in the shower, and moved on with our morning.

Decided I would go to noon Mass while Colby's dad was here with for his weekly 3-hour visitation. Put on a cute denim dress I had bought (love, love Burlington Coat Factory). Then I realized it had teeny, tiny belt loops on it, but when I bought it, no belt. Perfect. No problem I thought. I'll just dash into K-Mart, find a cute little belt to go with the dress/the rest of my outfit, and bing bang boom, I'll be off to Mass. They had 12,000 belts there, but not one was what I needed. They were either too big for the belt loops, or were just flat out ugly. New plan. Buy a $2.79 pair of scissors, cut the belt loops off while sitting in the van in K-Mart parking lot, proceed to Mass. Problem solved. Ate a candy bar for brunch on the way to Mass. Do NOT judge me. It was Mother's Day, I got to do some things I wanted to do.

Colby and I hung out the rest of the afternoon. Just kickin' it on the couch. Watched a little Spongebob, watched a little Reds baseball. Then we headed to Dairy Queen to see my mom for Mother's Day. My mom is a tiny, petite woman, but she can inhale a banana split like nobody you've ever seen! Maybe that's where I get my adoration for ice cream, it's genetic? So my Mother's Day was pretty much darn perfect. Nothing fancy or over the top. Just a laid back "uneventful" day. Got to spend some time with the world's most loving, sweet, generous, supportive mama, MINE. Every day I have with my sweet boy is Mother's Day as far as I'm concerned. I know that spending 10 Mother's Days with Colby is nothing short of a miracle, and I'm incredibly lucky and thankful for that.

Went to work yesterday. While I was gone Colby had PT and home/hospital schooling. Those 2 things wore him out. By the time I got home, he was practically asleep on the couch. The night nurse and I gave him a bath. Same old, same old around here for the most part. The ortho nurse called me at work. Colby's PFA levels are back within normal range, so that's good news. However, the lab result we're waiting on, the vonWillenbrand's, is not back yet. Sugar. Of course it's not. So I'm giving Cincy until 2:00 today to call and let me know the results, or I'll call them. Here's the new plan. If Colby does have vonWillenbrand's, we go to Cincy tomorrow. We'll see Hematology and the doc will give Colby a prescription for some medication to treat the VW. Then we go up this Sunday with VEPTR surgery on Monday the 20th. If Colby doesn't have VW, we have an appointment to see Hematology next week, although I'm going to reschedule that. I didn't realize they scheduled us to be there at 8:30 a.m., and that's just crazy talk. Not gonna happen. Colby will have a platelet aggregation study done. Not really sure what that involves. Will cross that bridge when we come to it. Hoping it doesn't come to that. Really, really hoping it doesn't come to that, so we can get this surgery over with as planned. Please hope and send good blood-clotting vibes along with us. Off to give Colby his morning medications. Don't worry, I'll double/triple check that the feeding pump is off!