TGIF - WHAT'S THAT?

Once upon a time there was a stressed out single mama. She spent much of her time and effort planning and making arrangements for the wonderfully sweet, handsome boy, only to have to re-plan and rearrange on an almost daily basis. Then she went crazy. The end.

This is pretty much how I feel at the moment. Colby did not test positive for von Willebrand's, meaning his surgery has been POSTPONED until further notice. Don't ask me when he'll have surgery, I don't know. Don't ask me how many further labs/tests he needs, I don't know. Don't ask me what I'm going to do about getting him back in school, nursing, going back to work, etc. I don't know. See a repeating theme here?

This is what I do know. We're taking Colby up to Cincy next week. Spending the night Tuesday night because he has an early morning appointment on Wednesday morning. He's having a platelet aggregation study done. Then we wait around (that's always a great time, NOT) and see a hematologist later that day.

Other than that, I'm trying to figure out the rest of it. Of course Colby has been out of school for weeks to keep him healthy pre-surgery. I called the nursing agency that the school system uses to see if they can provide nursing from now until the end of school for him. Waiting to hear from them. Going to call my boss today and see if there are some days I can pick up to work in the next couple weeks, since it's highly unlikely Colby's surgery will be rescheduled that quickly. Also working on getting the nurses around here lined up. One is still on medical leave. One is having various medical issues, going to several doctor appointments and being told to cut back on her hours. One has scheduled vaca for when Colby was supposed to be in the hospital. One was supposed to be here this morning for training at 8AM. It's now 8:22. Sigh. Where's that Bailey's?!

Thank God for my family and friends. My parents have been wonderful in offering to come over and help with Colby. I've been out to lunch or dinner with 3 different friends in the last few days. Just trying to do what it takes to keep my sanity. Been trying to exercise some. Did an aerobics tape yesterday called "Burn and Shape." Yeah well, I don't know how much I'm shaped now, but I sure am burning. Abs, triceps, shoulders and hamstrings all are killing me today.

I've been following the boy who changed surgery dates with Colby. His mama has been updating regularly. He's doing well. Very well. Already out of PICU and down to the TCC. Yay! So glad to hear. We're sending him continued get well vibes and prayers.

Time to start getting kid up. And call Hematology because I have questions about our appointment next week. And call and reorder 3 of Colby's prescriptions. And call my boss to line up a work schedule. And call nursing agencies to line up nurses. Oh goodie. TGIF my big toe! I'm just waiting for 2:00 to get here. My mom bought me a massage for Mother's Day and it's scheduled for today. Can't wait! More later, peeps.