Sunday, July 28, 2013

SUMMER IS TRUCKING RIGHT ALONG IT SEEMS

Wow oh wow, busy week. So get your eyeballs ready as I do a recap:

We had Colby's birthday party on his actual birthday, which was Monday the 22nd. Let me take a moment to say how incredibly proud I am of my sweet boy. He's cute, sweet and stubborn at the same time, funny, tough and all-around amazing!! I'm so blessed to be his mama. We toned it down big time this year. Had it at a local Dairy Queen, and invited just family and closest friends. We showed up, visited with everyone for a bit, sang Happy Birthday, ate cupcakes and ice cream cake, went home. Short and sweet. Colby got so many compliments on how healthy, good and handsome he looked. Seriously I was just bursting with pride. Love that crazy kid to pieces.

Tuesday we sat Colby up in his new Tumbleform chair (that thing is ginormous) and he opened his birthday gifts and cards. He got lots of cool presents and cash. Cash is good. Always the right size and always much-needed around here. We're going to use it to get Colby new school clothes and redecorate his room. No seriously, going to redecorate his room. I've only been talking about it since we put up his shelving last November. Hey, don't judge me, we get busy around here. I met up with one of my SMA mommy friends for dinner. I drive down from Louisville and she drives up from Lexington, meeting in the middle. Always super fun seeing her. We just get each other, of course, dealing with the maze of issues that comes with raising an SMA child.

Wednesday I worked. Nothing to report there, didn't break a machine, just packed and overwrapped some pills and came home. Wednesday night I met 2 friends from Henryville for supper. We know each other from waaaaaay back, and it had been much too long since we had seen each other. We talked and laughed, then talked and laughed some more. Great seeing them and getting caught up on our lives. So I spent very little time with Colby the whole day. Bad mama! Hey, no use having 16 hours of nursing a day and staying home and the dang time, right?

Thursday during the day I wanted to take Colby to the movies. But he needed post-infusion labs drawn, and of course the chick wanted to come at 12:30 to draw them. Right in the middle of the freakin' day. Thursday night I worked on training a new nurse. Seems like if we have 5 nurses, we're able to fill most of the shifts for Colby. One M-F day nurse. One nurse who picks up every other Saturday so I can work. Then 3 evening nurses who cover the 7 shifts in a week's time. And guess who does all this scheduling? Yep, that would be me. The scheduling dude at the nursing agency has a tendency to jack up Colby's schedule. Again, it's just easier if I do it myself. Not an easy task sometimes. There's my work schedule. Colby's school and appointment schedule. Then you have to know the nurses' availability. I work very hard to keep our nursing duckies in a row. That's why I get so pissed when a nurse quits. You have to find a nurse who has great skills and personality, along with fitting in the schedule around here.

I've been working on getting my yard sale stuff together. Yard sale, yard sale, yard sale. Finding items, cleaning up items, pricing items, boxing up items, taking items to Mom's. Whose dumbass idea was it to have this stupid yard sale?! Oh yeah, mine. Time to suck it up and get 'er done. If I had another month to get ready I still probably would say at that time, just need a few more days and I'll be ready. So I'll get as ready as I can and hopefully sell some crap, I mean treasures, next weekend.

Colby is having a great (i.e. healthy) summer. Once this ding-dang yard sale is over, I have a list of things I want to do with him before school starts. When he opened his bday presents, he got new pj's from Grandma and Grandpa Kenny. On his eye gaze later that day, he said clothing, pajamas, pajamas. Cute, huh? So we put his new pajamas on him immediately. You ask for it, you get it, son. He still won't drive his power chair. He'll sit out in that parking lot for half an hour at a time without doing anything. I could scream. Worked for years to find him a driving system that works, and now since the great Explorer crash of June, he won't do it. I swear, good thing he's cute.

Time to make Colby's food and hey guess what, I'm going to work on pricing some yard sale items. I'll update again when we have something to report. Toodles.  


HAPPY 11TH BIRTHDAY TO YOU, COLBY
  

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