Our weekend was decent. Nothing earth shattering. I worked
Saturday during the day. My brother, sis-in-law, nephew and niece were in town
for my nephew's cross country meet, so they stopped by for a visit. This was a
perfect opportunity for Colby to use his eye gaze. They had never seen him use
it before. I was encouraging Colby to say conversation-appropriate things on
the eye gaze - what's up, hi, how are you, etc. He didn't really do a lot of
that, but he did use it, and that was just fine with me. All in good time, I'm
convinced.
Sunday I had Colby all to myself. Aaaaaaah, peace and quiet,
my FAVORITE times nowadays, Colby and Mama time. Colby's dad was out of town,
so he wasn't here for his weekly 3-hour visit with Colby. I told the nursing
agency, no need for a nurse either. He has been gunky as all get out lately. He's
at the end of taking his antibiotic, so you would think he'd be all better. I
came to the conclusion that it was time to start the Robinol back. Oh boy, here
we go again. But I really didn't have a choice. He has been struggling to sit
up without choking, and his secretions are everywhere. So I'm starting out a
very small dosage, 0.5 mL 4x daily, and we'll see how it goes. Just can't find
that balance between drying up Colby's oral secretions and not drying up Colby's
trach secretions. The fun never ends around here.
Today I worked. Nothing like laboring on Labor Day I suppose. Then the night nurse and I gave Colby a
bath. Can't have him stinky you know. Tomorrow I start a new adventure. Here's
where the nervous part comes into play. I'm starting a new job at the hospital.
Not giving up my part time pre-pack job. This is in addition. Super excited
about it, yet super nervous at the same time. As long as Colby stays healthy
enough, I'll be able to do it. All day tomorrow and Wednesday I have
orientation. Yuck. I mean super yuck. I went through it 5 years ago when I was
hired for the pre-pack technician job. It's super sucky. But I'm not looking at
it that way. I'm going into this with a good attitude. First of all, I'm
getting paid for going to orientation. Second of all, this is a very good step
in the right direction to make a better life for Colby and me. Thirdly, I'm
getting paid for going to orientation. I can do this! New adventure, here I
come! Send some good luck vibes my way if you have time. I'll let you know how it goes.
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