CREEPY CREATURE & OTHER BLOGWORTHY NEWS

Check it out! Finally got a pic of that nasty, weirdo albino squirrel. Literally chased the thing around the parking lot. First I saw it on the ramp again, up by our door. Then it was under the van. Then it scurried across over by the pool. Then by this tree and eventually up the tree. I've had a couple people tell me that albino creatures are good luck. In that case, next time I catch it on the ramp, I'm going to capture it and make it our pet! Just kidding, that thing totally weirds me out.

Colby is at it again on his eye gaze. You'll never guess what he said at school the other day: "I want girlfriend." His nurse texted me that and I said oh no he did not! She said absolutely he said it. Lord give me strength. We've been working on how to get Colby to use Facebook through eye gaze. His speech therapist came over Friday and we figured out a few things. Not an easy process to get a kid who isn't able to use a keyboard and mouse on the Internet. But we're not giving up. He sent his first Facebook message, rxrxxrx. I was so stinkin' proud of him! My little high-tech redneck! Can't wait until he can communicate for real with everyone. Tonight around 8:00 he said, "am I tired?" Actually he was acting tired. So, yes Colby, I think you were, haha.  

Colby's nurse had a sore throat this past Monday, so she went to the doctor, just as she should. The rapid test was negative, so she thought cool, no problem. She worked the whole week, 40 hours, taking Colby to school. Then her doctor calls her on Friday and says the throat culture they took came back positive for strep, and they wanted her to start antibiotics. Dammit, can we not catch a break around here? Colby seems fine so far, I think. Thank goodness he's already on an antibiotic. We just finished that today. Although all 3 of his cough treatments were rough today. Had some oxygen drops and I had to stop the IPV, give a set of coughs with the CoughAssist, hook in oxygen etc. You can never be nonchalant with SMA. NEVER, not an option. So I'll be on heightened alert with him over the next couple of days.  

Not much else going on around here. Yesterday I worked. When I got home, the nurse and I got Colby up in his chair. Grandpa came over and we all played a riveting game of Yahtzee. Grandpa won. The nurse left at 5:00, and we didn't have a night nurse. It was very nice to have my sweet boy all to myself. Reminded me of the good old pre-trach days. Just Colby and mama. Don't get me wrong; I'm thankful for the help we have. We have 5 nurses right now, and I'm pleased with all of them. But some days you just need a little space! Today the nurse and I took Colby to pick out his Halloween costume. Nope, I'm not telling what it is. You'll have to wait for the pictures.  Colby seemed to have a good time looking around at all the scary stuff hanging from the ceiling. I was like a kid in a candy store. Did I mention I really, really, really like Halloween?

Okay, look people. The Colts/Broncos game is on, so I'm wrapping this up now. Hope my Colts can hold on to their lead. We've got a pretty busy week ahead, but I'll update when I can.