Monday was an interesting day. While Colby was at school I
went and visited with the ex in-laws (the 1st set, haha. ) Hadn't seen them in
probably 18 years or so. Had the most wonderful visit. So glad I went. Picked
Colby and the nurse up after school so we could take Colby to get his flu shot.
That kid is one tough dude, let me tell you. Took him to Kroger because I
thought it would be easier/quicker than going to the pediatrician's office.
Think again, there were several people in front of us getting their shot, too. Seemed
to take forever. Colby did awesome. Didn't cry or whine one bit.
Kudos to the principal at Colby's school for helping arrange
swimming therapy for Colby. They have a pool at his school, but it's not ideal
for Colby. It would be difficult getting him in the pool. Plus I could tell the
school was leery to have Colby swim there, even if I was there to get in the
pool with him, since he has a trach. The principal said, hmmm, we've never had
a trached kid swim here before. Yep, leave it to us, we're trailblazers! We
were able to make arrangements with the same facility we went to over the
summer. They have a beautiful, modern swimming facility which is a much better
option for Colby. So on Tuesdays the school bus will take Colby and the nurse
to this facility. I'll meet them there and we'll get Colby in the pool. The
lady who runs the pool at this facility found a perfect vest for Colby to use.
It supports his head and neck, but still allows him to move his arms, hips and
legs. Very excited for Colby to get to go swimming.
Wednesday Colby got in "trouble" at school. He was
being a total poop head. He refused to answer his math questions. I mean flat
out would not do it. So the teacher gave him 5 problems to do at home. Then he
refused to do them at home. He was being beyond difficult that day! So he got
no Spongebob until he got his math done. Then I went ahead and tacked on some
more time, so no Spongebob until 5:30. I told him the next time I got a report
like that from school, it would be 6:00 until he got to watch Spongebob. The
next time after that, 6:30, etc. Not sure if he was just having a bad day
Wednesday or if the Spongebob threat worked, but he was more cooperative on
Thursday and Friday. Stubborn doesn't begin to explain this kid's personality,
holy crap.
I would love to tell you that the situation of ordering
supplies with Apria has gotten better, but unfortunately it hasn't. I've talked
to customer service, the RT that is in charge of Colby's account, and now the
branch manager at the local level. I've called the processing center and got
the name and direct line of someone who is supposed to be helping me get
Colby's trachs. It continues to be a big, fat, horrible, frustrating mess. On the
17th I ordered 8 items. As of today we have received 6 of them. We're allowed 4
CoughAssist filters monthly. They sent 4 alright…4 cases! We have 200
CoughAssist filters sitting in the living room! Freakin' idiots! If it wasn't
such a total waste of money, I'd pitch them in the dumpster so I didn't have to
mess with it. But I know that's not the right thing to do, so I'll work on
returning them. Oh, and Colby's trachs were supposed to be delivered Friday. Of
course they weren't. The lady at the processing center said to call her if we
didn't receive them. I called her, left her a voice mail message. She didn't
return my call. Yep, same old, same old shit there.
Thursday I had a much-needed girls' night out. We went to
the Haunted Hotel. My friend and her sister go every year, and I've gone with
them the last 2 years. I kept saying, okay, I'm not going to scream this year.
I've done this before, I'm ready. Well forget that. Along with jumping out from
the dark shadows and corners, they're allowed to reach out and touch you now. That's
just messed up. It was a terrifying blast. So glad I went. Already looking
forward to going again next year.
Okay, I'm getting a little chatty here, so I'll wrap this up for
now. The nurse will be here in 15 minutes. If she's on time, of course. That's
always a big IF. She'll get Colby up for the day. I'm going to go walk, then
start getting ready for work. Yep, my weekend to work 2nd shift on the counter.
Simply just can't wait (note the sarcasm in that statement.) Later, taters.
Time to get this day started.
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