Friday, November 15, 2013

Friends Show Their Love in Times of Trouble, Not in Happiness -- Euripides --

I have no flippin' clue who that Euripides dude is, but I loved this quote. You'll see why later.

We all have days that are set in our mind. The day someone is born, the day someone dies. The day you get hired, the day you get fired. The day you get married, the day you get divorced. One of those days for me is what I call D-Day, the day we received Colby's diagnosis. Hard to believe that on November 14, ELEVEN years ago, I was told my sweet boy had SMA. Talk about a kick in the pants! Nothing like being told your kid won't live to be 2! Yeah well, mean, cold, inconsiderate neurologist we saw here in Louisville, you can suck it! He told me "there is nothing that can be done for him." Oh really?! Wrong, wrong, wrong! Children with SMA most certainly can and do live past 18 to 24 months of age. And furthermore, you asswipe, Colby isn't just alive, he's LIVING and THRIVING because so many of the people who love him have sacrificed for him to have a healthier/happier life. I'm not the only one in that category - many, many people help me with Colby and have done nothing short of move mountains for that child. I can't lie, yesterday was a hard day for me emotionally. But I refused to let myself cry. Instead I focused on all the wonderful memories I have with him, and the sweet, cute, smart, amazing, awesome son Colby has turned out to be. He makes me so very proud to be his mama. However, I did allow myself to have a Heath bar and Bailey's on the rocks for supper. You handle your bad day your way, I'll handle my bad day my way. Don't judge.

There are days I could absolutely crawl up in a corner, assume the fetal position, start sucking my thumb, picking and eating imaginary bugs out of the air. It has nothing to do with Colby directly. I love spending time with him and love taking care of him. His jabbers are the most beautiful noise I've ever heard. But as you all have heard me go on and on and on about, the calls, appointments, supplies, equipment and overall incompetence of others drive me completely nutso. Thank God for my parents and thank God for my friends. They have helped me maintain my sanity (for the most part) over the years. I have the BEST bunch of girlie friends I could ever hope for. When the poop hits the fan, that's when you find out who your TRUE friends are. I'm very proud to say I've kept a lot of TRUE friends over the years. I live a very different life from them, heck different than most people really, but it doesn't matter. They love me, they love Colby, want to help and want the very best for us. What more could I ask for, you know?

Just this past week I've had 3 amazing examples of my friends' unconditional love and ongoing support. Sunday a friend stopped by after church to say hi. We hadn't seen her in forever. I was at work so I missed her, but she came in and hung out with Colby for a bit. She also left me an envelope labeled "just a little love." She knew money has been tight around here lately and wanted to help. I totally wasn't expecting it, and was very humbled by her generosity. Then another friend sends me a text and says, I want to come help you clean, which day is better Monday or Tuesday? I mean really, who does that?! My kind, thoughtful, amazing friend, that's who. She came over Tuesday and helped me clean for 2.5 hours on Tuesday while Colby was at school. We got the Halloween decorations packed away and Thanksgiving decorations out, among other cleaning. I'm sure she was thinking I'm a total goof ball. And the answer is yes, I have decorations for every season/holiday. Don't judge. And to top it all off, my BFF is organizing a fundraiser for us. Just because we need it and because she wants to help. She has taken care of everything. I'm pretty sure all I have to do is show up! I mean wow. Just wow. Can't believe how lucky I am to have these, and many other, thoughtful, kind, sweet, fun, loving, caring women in my life. So THANK YOU to my buds for all you did this week. And thank you to all my friends who have hung in there over with us over the years. It's been a wild, winding, wondrous road travelled, that's for sure, and if I didn't have you by my side I honestly don't think I could do it. Thankful for my BFF's today and every day.  

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