TWO THINGS I'VE DISCOVERED I NEED - GNO AND HOT WATER!

Who's ready for another Girls' Night Out? I am, I am! Went out with some girlie friends last Thursday. Nothing fancy, just to Buffalo Wild Wings for supper. Note to self, go somewhere else for conversation. That place was loud! But we still had a great time. I've known these chicks forever. I mean we go waaaaaay back, and it's so great we've stayed friends all these years. I haven't spent enough time with friends lately, and I really need to work on that. My friends keep me grounded and positive, and I certainly have needed help in that area lately. Last Friday I ran down to Lexington to visit with another SMA family. They needed to borrow a piece of equipment. We had a nurse so I said hey, I'll bring it to you. It was great visiting with another SMA mommy. We speak the same language, literally, SMA. We can talk about stuff and support each other in a unique way. Plus I got a couple beers and quesadillas out of it. Oh yeah.  

Colby has had an easy school week so far. Monday he was off school. We got to sleep in until 8AM! The nurse and I took him out to a pre-surgery physical here in Louisville. Colby has seen the same pediatrician since his diagnosis. Luckily we haven't had to go out there much in the last couple years. Dr. Lehocky was excited to see Colby. He went on and on about how good Colby looked. He had many compliments for Colby, saying how amazing he is, how far he has come, etc. Made me extremely proud. Tuesday he got to leave school early because it was swimming day at Home of the Innocents. Colby was digging it. Love to see those legs moving through the water. Then later that night we gave him a haircut and bath. He was one tired boy last night. Today his class had a field trip, so I bet he loved not having to learn or work on math, reading, etc.

So do you want to hear another genius move that Apria pulled this week? Or as some of my SMA mommies call it, Crapria (hilarious!) Sure you do. Apparently UPS had been trying to deliver a package here that needed a signature for delivery. After the 3rd attempt, UPS said I had to come pick it up. I had no idea who it was from or what is was. I was like, oh great, I'm probably getting subpoenaed. Then I thought, I bet you anything it's from those dumbasses at Apria. Sure enough. Went to the UPS pick-up site, signed for it, and it was a box from Apria. A box of 14 French red rubber catheters. This is a double shipment, we just got those in a delivery from Apria a couple weeks ago! So now in the last month they've sent us 196 too many CoughAssist filters and 90 too many red rubber catheters. Well guess what, I'm not sending these back. Just won't order them next month.

Our day started out just oh-so lovely. No hot water. None. Last night when we were giving Colby a bath around 6PM I kept having to turn the cold water down. The water was barely warm by the time we got done. Then it was completely out by 8PM. It wasn't an isolated incident - the whole building had no hot water. Finally at 3:15 today we got our hot water back. Good times, gooooood times.

I guess that's about it for now. I'm letting all the piddly, everyday crap get to me around here, and I just need to stop it. There are lots of people around who are in far worse shape than us. I have tons of support from family and friends, and everything is going to be okay. So I just need to pick myself up, suck it up, and move on with it. Life is too short to be sad, stressed or worried all the time. After all, this is the month to remember what we're thankful for, right?