But we also got some good news today. Colby has pre-op appointments
in Cincinnati
next Monday and Tuesday. We have a lot to get done in those 24 hours! I've been
working with the ortho spine nurse to make sure everyone is on the same page. I
want to know exactly what specialists we're seeing and exactly what blood labs
need to be drawn. Remember the fiasco we had with Hematology last year at this
time?! NOT going through that crap again. I really like this nurse so far. She
seems to be on top of things, and returns phone calls. She checked with all
those involved who wanted labs, and she told me that all of Colby's blood work
can be drawn from his port. Now that is darn good news. Great news, really. She
made my whole day. I'm very, very pleased to hear this, since Colby is such a
horrible stick to try and get a peripheral draw. I'm pissed that Colby had to
go through what he went through last year to get the blood work, but sooooo
happy we're not going through that crap next week. Happy dance time.
We're trying a new medication with Colby. He
"slobbers" a lot since he doesn't have a swallow and has very limited
movement of his mouth and tongue. He's always had lots of oral secretions. I worry
that they may drain down his throat and cause aspiration. I also worry about
the aesthetics of Colby drooling these days. He's getting older, and I can't
help but think it may bother him some. Maybe, maybe not, but I wanted to try
something else. We tried Robinol over the summer, but it just didn't work for Colby.
Dried out his secretions too much, which caused trach plugs. That's a huge
no-no. I'll take slobber over plugs any day! So this time around we're trying scopolamine. It's a transdermal patch you change every 3 days. We started
using it last Friday. I'm already having my doubts it's going to work for
Colby. It tries up his secretions for sure. He had his normally scheduled trach
change tonight and sure enough, there were dried, "cement-like"
secretions stuck in his trach. That's not good. That's exactly what happened
with the Robinol. We'll see the pulmonologist this coming Tuesday and discuss
it then.
Colby took a big, fat nap today. So unlike
him. I got home from work at about 3:30, and by 4:00 this kid was zonked out. One
eye shut, one half open, heart rate in the 60's. Yep, that's how Colby snoozes.
Guess he wanted to be well rested and stay up with me to watch the Cards vs Cats.
Although we already, of course, know who's going to win. And that's all I have
to say about that. Good night, all. More blogging soon.
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