Monday, March 17, 2014

TOP O' THE EVENING TO YA

Finally found my license a few days ago. It was stuck down in a Walgreens bag. Of course, where else would it be?! How did it get there? Not quite sure, don't ask me how or who or why, just very thankful I found them when I did.

During Colby's IEP, we talked about increasing his school day an hour. If we did, he would go to school 5 days a week from 9:45 to 2:15. I'm the one who thought of it, but lately I've been rethinking this idea. Colby has been tuckered out on Thursday and Friday the last couple of weeks. I think it's a combination of going to school more days, swimming on Tuesdays and puberty haha. Last Friday morning he slept through his entire IPV and CoughAssist treatments. Then when he went to school that day, he kept saying "sleep" on his eye gaze. So I'm going to give it some more thought and see how he does over the next couple of weeks.

We have the loaner eye gaze for Colby. We've had to fine tune a few pages so it's more like his old one. Not my cup of tea. Last night the nurse and I, along with Skyping with Colby's speech therapist, were trying to figure out why the wireless wouldn't work on it. Finally got that mystery solved. Today in school he was asked to spell March. He got as far as M-A-. I had him do R-C-H as homework when he first got home from school. He must've really wanted to watch Spongebob, because he had it done in about 20 minutes. Amazing what a little bribery can do.

We were able to go to the St. Patrick's Day parade this past Saturday, and it was pretty much a darn perfect day. The weather was fabulous. We had a nurse to go with us and help. Colby didn't have the first sign or symptoms of a choke. We left home at 2:00 and got home about 5:30. I had all these grandiose ideas that we would get Colby settled, the nurse would leave and I would get on the ball and do a workout tape. Yeah, that did NOT happen. I was exhausted. We had to walk 5-6 blocks from where we parked up to the parade and back, so that was good enough for me.

Okay, listen to me. It's 100 days until Colby's VEPTR surgery. Not that I'm counting. Not that I'm obsessed with it. Not that I'm already worried to the nth degree about it. Not that I think about it every day. I'm sure I'm already driving Colby's nurses crazy. I seem to have a question/worry du jour concerning his upcoming pre-op appointments, the surgery itself, or the recovery. So, friends who are in close contact with me, it's now officially your job from here on out to keep me sane, unfrazzled and somewhat calm over the next 3+ months. Hey, good luck with that, I'm a total freakin' mess you know.

Sleepiness is starting to set in. I made corned beef, fried cabbage and mashed potatoes for supper to celebrate St. Patrick's Day of course. Am I Irish? Nope, not one bit, but it gave me an excuse to make a yummy, fattening, carb-infested, sodium-ridden dinner, and dang it was good. Tomorrow it'll be back to oatmeal and turkey burgers <insert large sigh and eye rolling here>. Time to wrap it up for now. More fabulous blogging soon. Stay tuned.   

No comments:

Post a Comment