During Colby's IEP, we talked about increasing his school
day an hour. If we did, he would go to school 5 days a week from 9:45 to 2:15. I'm
the one who thought of it, but lately I've been rethinking this idea. Colby has
been tuckered out on Thursday and Friday the last couple of weeks. I think it's
a combination of going to school more days, swimming on Tuesdays and puberty
haha. Last Friday morning he slept through his entire IPV and CoughAssist treatments.
Then when he went to school that day, he kept saying "sleep" on his
eye gaze. So I'm going to give it some more thought and see how he does over
the next couple of weeks.
We have the loaner eye gaze for Colby. We've had to fine tune
a few pages so it's more like his old one. Not my cup of tea. Last night the
nurse and I, along with Skyping with Colby's speech therapist, were trying to
figure out why the wireless wouldn't work on it. Finally got that mystery
solved. Today in school he was asked to spell March. He got as far as M-A-. I
had him do R-C-H as homework when he first got home from school. He must've
really wanted to watch Spongebob, because he had it done in about 20 minutes. Amazing
what a little bribery can do.
We were able to go to the St. Patrick's Day parade this past
Saturday, and it was pretty much a darn perfect day. The weather was fabulous.
We had a nurse to go with us and help. Colby didn't have the first sign or symptoms
of a choke. We left home at 2:00 and got home about 5:30. I had all these
grandiose ideas that we would get Colby settled, the nurse would leave and I
would get on the ball and do a workout tape. Yeah, that did NOT happen. I was exhausted.
We had to walk 5-6 blocks from where we parked up to the parade and back, so
that was good enough for me.
Okay, listen to me. It's 100 days until Colby's VEPTR
surgery. Not that I'm counting. Not that I'm obsessed with it. Not that I'm
already worried to the nth degree about it. Not that I think about it every
day. I'm sure I'm already driving Colby's nurses crazy. I seem to have a
question/worry du jour concerning his upcoming pre-op appointments, the surgery
itself, or the recovery. So, friends who are in close contact with me, it's now
officially your job from here on out to keep me sane, unfrazzled and somewhat
calm over the next 3+ months. Hey, good luck with that, I'm a total freakin'
mess you know.
Sleepiness is starting to set in. I made corned beef, fried cabbage and mashed potatoes for supper to celebrate
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