Tuesday, May 20, 2014

MAY IS ZIPPING ALONG THAT'S FOR SURE

I think we have the nursing situation worked out. Of course as soon as I say that, watch one of them quit tomorrow. People get this confused all the time, so let me explain it, again. We deal with 2 nursing agencies. One is the agency the school corporation uses. The other is the agency we use at home. They are NOT the same agency. Just because we have a nurse we like here at home doesn't mean I can send that nurse to school with Colby. She/he would have to interview with and get hired by the "school" agency, then that nurse could go to school with Colby. Clear as mud? It just so happened over the summer we had a wonderful nurse here at home. I knew she would be perfect to go to school with Colby, because that task ain't easy! So that's what she did. She worked 3 hours a day with our "home" agency, then she went to school with Colby and worked 5 hours a day with the "school" agency. The nurse that goes to school with Colby doesn't work for the agency we use here at home. So she goes to school with Colby and that's it. Currently we have 5 part time nurses through our "home" agency covering night shifts and weekends. As soon as school is out, one of those nurses will become Colby's full time, Monday-Friday nurse. Get it, got it, good.

I've also talked to our nursing agency about getting us extra nursing for when Colby gets home from surgery. Colby is on the Model II Waiver, which qualifies him for 16 hours of nursing per day. I've been told by several SMA moms that it'll take 2 people to take care of Colby around the clock for a couple of weeks once we're home. There will be a certain way to move him, transfer him, change him, etc. and apparently that certain way requires 2 people. Uh, well, hello, single mama here. I've been gently reminding the dude at the nursing agency to keep working on it. Squeaky wheel, you know. Haven't heard an answer yet, but I'm on it!

After a couple weeks' hiatus, Colby got to go swimming today. He didn't have school, as it was election day here in the fantabulous commonwealth of Kentucky (sarcasm.) My mom, God love her, volunteered to go with us and help. Actually it went well. Colby was really into it today, kicking those skinny legs like crazy. Guess we'll have to work on getting him back in the pool next week, too.

I had the best time over the weekend with some of my girlie friends. Eight of us went to Churchill Downs and made a day of it. Lots of food, booze and laughter was flowing all day long. We met here at the apartment and rode together. I might have maybe possibly made some sangria that we could have maybe started drinking around 11:30AM. Hey, don't judge. By the time we got home, my face hurt from smiling and laughing so much. I hope everyone had as much fun as I did. I'm going to make sure we do it again next year, too.

It's getting late. Colby is tucked in and I'm ready to hit the hay myself. The countdown for surgery is now 36 days. Ick. It's right around the corner. Barf. I'm not ready for this. Crap. Too bad, it's going to happen, God willing. And God willing, we'll get home in a reasonable amount of time after surgery with no infections or complications from the surgery. I'm thinking 7-10 days would be about right. And furthermore, God willing, we'll have extra nursing help to get us through a couple post-surgery weeks. Yuck. That's what I say about all of it. Just yuck and double yuck.

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