THESE ARE THE FACTS OF OUR LIVES

Our Memorial Day weekend was great. Our week since then has totally sucked, but I guess sometimes you get the bad with the good. Suddenly I'm thinking Facts of Life - you take the good, you take the bad, you take them both and there you have…Well anyways, Friday I went out for a while. The weather was perfect. Ate outside, went for a walk, watched an outdoor concert. So nice to kick back for a few hours and have some adult conversation and fun (and adult beverages, yay Stella.) Saturday we had no nursing. Six nurses currently taking care of Colby, and we go a whole day without help? How does that even happen?! However, I'm not complaining! We had a great day together. Sometimes we need that one-on-one Colby/Mama time. Well, I don't know if Colby really needs/likes/wants it, but I sure do. He took a couple breaks off his vent, one for 1 hour 27 minutes and another one for 54 minutes. He is a stud! I couldn't stop watching the History Channel and all the shows they had on about WWII. I had Colby watch them with me. Colby needs to understand what being a soldier and serving your country means. As they say, freedom isn't free.

Colby's eye gaze is working again. For how long, who really knows. So I reprogrammed his TV channels for the umpteenth time. Wish I had a dollar for every times that's been done. It was 7:30PM and you know what that means, Jeopardy time! Yes, I also make Colby watch that with me. He needs to know something besides Bikini Bottom. I switched the channel to watch it. He got on his eye gaze and switched it back to Nickelodeon. I switched it back to Jeopardy, he switched it back to Nick. It was pretty darn cute. On Sunday I went back to his room. He was watching TV and had his eye gaze in front of him. I said Colby, I must kiss your face, it's just so cute. He looked at his eye gaze and said, "you're welcome." I just laughed and shook my head. He is such a stinker.  If it's something he WANTS to say or do on eye gaze, he'll get it done. If only he WANTED to spell or communicate his needs. Maybe one day.

Sunday we had a few people over for a fish fry. My dad goes on several fishing trips a year, so we always have a buttload of fish to use up. We had fried walleye and yellow perch, hush puppies, broccoli casserole, cole slaw and Rice Krispie treats (Dad's favorite dessert.) I ate until it hurt to breathe, but what else is new? Monday we had a nurse but only for 4 hours. So we had some more Colby/Mama time. I soaked in every second of it. I'm sure I got on Colby's last nerve. But that's what moms do sometimes, right?

Yesterday and today have totally sucked. Here are a few of the highlights. One of the nurses called off. One nurse totally forgot to give Colby a feeding. I mean just flat out didn't do it. He went almost 7 hours without eating! Oh good gravy, I was pissed. My mom and I took Colby swimming, and that was great. Colby loved it. Then we go out to get in the van and the steering column is all jacked up. Van won't go into gear, won't start, totally broke down. I've never had a vehicle break down on me, ever. Guess I was due, huh? Thank goodness for the old Terdmobile! That's right, good old Terdy to the rescue. I've been asking myself why in the world I don't sell that thing, well, now I know. I keep it at my dad's. When the going gets tough, call Daddy! He brought over Terdy so we could get Colby home. I kind of, sort of, snapped the headrest off Colby's wheelchair when we were loading him up. Told you it was a crappy day. But it's all good now! The white van is back, fixed, and Terdy is back at my dad's until the next time we have an emergency. The wheelchair dude came over after school and replaced the headrest. We rigged the headrest up with duct tape so Colby could go to school today. Don't think we didn't, because we totally did.

The countdown stands at 7 more school days and 28 more days until surgery. More info on that stuff later. I'm wrapping up this blog for now. It's getting long and honestly, I want to watch The World Wars on History Channel. No, I'm not making Colby watch this time. His nurse is getting ready to do his nightly cough treatments. Then we'll read a few pages of The Hobbit and go to bed. School tomorrow for him and work for me. Good night, blog readers. Peace out.