Wednesday, April 20, 2016

ONE APPT DOWN THIS WEEK, ONE TO GO

Our trip to see Endocrinology at Cincinnati Children's yesterday was, in fact, uneventful. Yay! We got in a little traffic going up. Got caught in some post-wreck traffic right before the bridge coming out of Cincy. It looked like a really bad wreck. Hope everyone was ok. Overall everything went fine. Left at 11AM and got home around 7PM. Like I said earlier, that's a long damn day for one stinking appointment. Colby is such a trooper! He never whined or cried once. Just went with the flow like the sweet boy he is. Hopefully we can spread out the next endocrinology appt to a year instead of 6 months. The endocrinologist and I discussed if the infusions were working and should Colby stay on them. The answer is yes. His bone density has improved slightly over the years. We'll take any improvement we can get! Colby is scheduled to have a DEXA scan in July and his next infusion will be in October, so we're done with Endocrinology for a while.

So Colby totally doesn't want me sharing this, I'm sure, but he has been very constipated lately. Non-pooping is common in SMA kiddos. We include prune juice in Colby's diet daily and this usually helps him go just fine. We noticed he was having some trouble, i.e. pitiful little excuses for poops. Started giving him MiraLax and extra prune juice, but those didn't helped. Moved to the next help-Colby-go step, suppositories. Gave him 3 suppositories over 3 days, that didn't work either. I told him yesterday, I'm sorry buddy, but if you don't go today we're going to have to stop on the way home and I'll get you an enema for tonight. I think that literally scared the poop out of him! He went once while we were at Cincy. Had another extra-extra large BM last night, and another good sized one today. Constipation problem solved. Guess next time I'll make mention of an enema much sooner!

While Colby was at school today I got the yard work done. I have a little experience with mowing but none with weedeating. Honestly I'd never even held a weedeater before until my dad gave me one at Easter. Most parents give their child a chocolate bunny, but I got a weedeater. Hey, it's a great present if you ask me. Runs on lithium batteries because as we all know, I would surely cut right through a cord if I had that kind of weedeater. My novice skills were evident today when I chopped right through my peony in the back yard. Woopsie! Hate when that happens!

We just got done giving stinky Colby a bath. Usually that's a Tuesday chore, but we got home too late last night. Next I need to do some packing for our Cincinnati Children's appt. Time to print out the don't-leave-home-without-it list and get busy. We drive up tomorrow. Fingers crossed no traffic problems tomorrow. Check into TCC, stay overnight. Then Colby is scheduled for an MLB procedure at 11AM on Friday. That's seems late to me, so who knows what time we'll get home Friday afternoon/evening. Colby's dad comes to visit him on Wednesday nights. We're not exactly on speaking terms, so I'll make like a log and split while he's here. Need to take back some rugs I didn't use and return Crock Pots I borrowed for open house. Saturday I'm giving myself permission to have a big, fat, do-nothing day! After this week, I think I'm going to need it! Have to DVR “60 Days In” in case they don't have that channel at the hospital. Can't miss it. I'm mesmerized by what might happen next. It's such a good show!

Wrapping up for now. Just wanted to let everyone know how Colby's Endo appt went. Once we get through this scope procedure, we don't have to be back at Cincy until May 26. Hallelujah. I'll blog when there's more to blog about, like how our next Cincinnati Children's adventure goes.


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