OPEN HOUSE, SUCCESSFUL. UPCOMING CINCY APPTS, HOPING FOR MORE OF THE SAME

We would like to say THANK YOU to all who were able to attend our open house over the weekend. We all worked really hard to make the house and yard pretty-pretty for the event, and I think it showed. If my count is correct, we had 63 guests. I know it's a busy time of year, so if you were here, we truly enjoyed your company. I loved sharing our new home with those who have donated generously to make it all a reality. I could never say THANK YOU enough times over to everyone who helped over the last 15 months to get us in this beautiful house. There are still a few to-do items on the house list. There always is, right? But for now I'm going to just worry about general upkeep and not focus on the extras. Our house is gorgeous just the way it is, and I should enjoy it to the fullest.

However, we have noticed some ants in the kitchen! Oh my gosh, big, black ants! No, no, no, no, no. Can't have that. So I've set out a couple of ant baits hoping that solves the problem. If not, I will be calling an exterminator because I just can't have those pests crawling over the kitchen. No way, no how, ain't happening.

I would love to say oh, after the open house we can kick back and relax this week. Nope, that ain't happening either. Colby has a busy week at Cincinnati Children's. Tomorrow we go up and back for an Endocrinology appt. Walgreens Infusion is coming to the house first thing in the morning to get Colby's 7-day post infusion labs. Then around 11:00 we'll head to Cincy for one stinking appointment. Ugh, I hate when we go up to see only one doctor! But it has to be done. I've put this off for as long as possible, so we better get Colby's little butt up there to see Dr. Stenger. I kept Colby home from school today. His class went on a field trip to Camp Crooked Creek. Colby has already been there twice and has done everything the camp has to offer. So considering we have such a busy day tomorrow, I let him play hooky today.

Thursday we check into Cincy Children's TCC and stay overnight. Colby is scheduled for an MLB on Friday morning, which stands for microlaryngoscopy and bronchoscopy. These are routine checkups for Colby. Basically they put Colby to sleep, then ENT goes in with a scope to look at Colby's airway and trach. Then when they are done, Pulmonary steps in to scope and look around in his lungs. This will be Colby's 3^rd MLB, I believe, since being trached. My dad will drive us up. Trying to get him a room across the street at the Ronald McDonald House. If not, I've made him a reservation at a local hotel. I will be staying in the TCC with kiddo, of course. Should be able to come home Friday afternoon.

So I called TCC to make sure Colby was on the admission list for Thursday and ask what time to be there Thursday. Talked to the unit charge nurse who says yes, Colby is on the list for Thursday. Cool. She tells me to call Pulmonary to find out what time they want us there. Ok, sure. I call and talk to the Pulmonary nurse, who tells me to call the TCC. This is the kind of stuff that drives me absolutely batshit crazy. So as of now, I don't have an answer. Pulmonary says I need to call TCC the day of Colby's appt to see how the admissions and discharges are going for the day. I get that, I really do. But my dad drives from southern Indiana to here. Picks us up, we load up Colby and then head to Cincy. He would probably like an accurate time of when to be here so he can plan for morning traffic and such. Once we get home on Friday, I plan on collapsing for an hour or two. Hoping Colby will be loopy still from the anesthetic so we can take a nap. Or go to bed really early, whichever the case might be.

Again, thank you, THANK YOU, to our family and friends for coming to the open house. Hope a good time was had by all. We had perfect weather, delicious food, and cold beverages. Sounds like the makings of a fun time if you ask me! We have lots of leftover beer so maybe I'll be having another party soon to serve the “leftovers” wink-wink.

Time to get my duckies in a row for the Cincy trip tomorrow. Already got the van gassed up and need to pull together a few things now to make tomorrow morning go more smoothly. Fingers crossed for an “uneventful” trip tomorrow. Our favorite word, you know. When you live with SMA, uneventful is a wonderful, glorious thing.