The last few days have been great around here. I wasn't able to order Colby's supplies from Apria. I looked back and noticed it wasn't quite time to order his trachs, so ordering supplies is on the to do list for tomorrow. Also going to order Colby's supplements and other items we pay for out of pocket. I think that'll be the easiest way to handle all these supplies. Take the time to do 1 or 2 big orders a month. As if you hadn't noticed, I'll hell bent and determined to organize, de-clutter, streamline and make things easier around here!
Thursday we got Colby outside and he finally got to use his new squirt gun. We hid behind the van, then when my dad came over Colby ambushed him. It was priceless! Dad was a great sport, of course, and played it up. I could tell Colby loved it. He was squeezing that switch with all his might, really cute. Thursday night we had a nurse back for the 2nd time. When they're here the 1st time, I train them and show them how things need to be done around here. This time I let her do Colby's care. She'll be back again one day this week. Don't know if I'm ready to go far and let her stay alone with Colby just yet. Maybe that'll be my go Krogering night (it's 1/2 a mile down the road) and we'll see how she does.
Friday was busy, busy. I went and worked at the hospital for a couple of hours, just to help get things caught up for the weekend. Came home and the nurse and I gave Colby a bath. Then a couple of my BFFs came over and worked diligently on Colby's room. I've decided to bite the bullet and spend the money on a shelving/cabinet system. It'll be worth it. They can bring in all the supplies, do all the labor and bing, bang, boom, it'll be done and be done correctly. We had that bedroom torn apart for 3 hours, moving stuff around, seeing where the hospital bed should go, etc. We were measuring, drawing, figuring out what furniture stays, what will go. Then we had to move everything back for now, it was crazy! But I have a clear idea of what I'm looking for, and the shelving company is coming out this week to take measurements, give a quote, etc.
Yesterday I was determined to have a lazy day, and that's exactly what we did. Did our normal stuff: sat Colby up in his power chair. He used his eye gaze. He took a couple windows off his vent. Played with that goofy crab haha. I did a load of laundry and watched a movie. I did manage to bathe but other than that, I didn’t do much else. Just wanted a day to hang with my boy. It was so much fun we decided to do it again today! Same thing pretty much, only I took Colby outside. Just for a few minutes, though, because it's still so stinkin' hot and humid outside. Let him drive his chair for a bit. It's so frustrating. Over time I see Colby's left hand/fingers getting weaker and weaker. We've tried about every time of switch with him so he can drive or turn with his left hand, but man, it just isn't working out these days. I think our last option is fiber optics. We're looking at that for his new wheelchair maybe.
That's all I know. Colby's night nurse is in the kitchen doing something, making feeding packets I think. Guess I'm off to bed.
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