"I feel bored." This is what Colby told his speech therapist today, not once but twice, while they were working on eye gaze. He's nothing if not honest I suppose! Finally got his super soaker squirt gun hooked up to the battery interrupter and working. Since he doesn't have the strength to pull the toy's trigger, we put in an interrupter. It's a tiny disk that you place over the battery of a toy, appliance, radio, anything that uses batteries. Then you hook the interrupter into a switch and this allows Colby to use the toy. Make sense? Can't wait to take him outside so he can squirt somebody (besides me preferably).
I worked at the hospital today. That'll be it for packing pills until next Wednesday. Very quiet day, didn't break anything.
That's all I got. Not much going on around here at the moment. Colby's nurse is in the kitchen making packets for his feedings. I've got a lot of work to do in the next couple of days, de-cluttering is top priority. It never ends when you live in a small space, that's for sure. Seems like every time I get rid of 1 box/pile of crap, 3 more are waiting. Going to sit down tomorrow and put in a huge order with Apria, which will be even more boxes to go through, organize. I've made a spreadsheet in the hopes that will help me keep better track of what Colby has, needs, when to order it, how many insurance allows monthly, etc. Yes, Colby has that many supplies and equipment.
Starting to work on reorganizing and redecorating Colby's room. I've got my ace team brain trust (Amy, Kim, Joni) coming over Friday night so we can measure and figure out the best way to get storage and floor space out of Colby's room. Okay, there may also be Pizza King and cold beer involved, but we'll get some work done, too. At least that's the plan at the moment. Then once we figure out what will work best, may have to buy some new supplies and furniture for Colby's room. Then I'll get another group of suckers, I mean volunteers, to come in and help with the cleaning, rearranging, etc.
August is SMA Awareness Month. Throughout the month I'll share some facts and my thoughts on Spinal Muscular Atrophy. I don't really have any deep thoughts about it at the moment. It sucks. It's unfair. No child deserves it. I hate it. I'll always hate it. Yeah, pretty much sums up my thoughts about it for now.
Getting ready to watch the American male hottie swimmers in the Olympics, then off to bed.
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