GETTING SO MUCH DONE I EVEN AMAZE MYSELF HAHA

MONDAY - Busy but good. Made phone calls and got on the internet to order a buttload of supplies for Colby. Made some zucchini bread and muffins. Colby's nurse and I gave him a bath. Colby had PT at 3:15, so our nurse and I were busting our buttons to get him ready so he could go outside and ambush his therapist with his super soaker squirt gun. We gave him his cough treatment early, hurried up and got his back brace on and put him up in his power chair. Got him in the living room and was getting his squirt gun together, and in walks his physical therapist. She was 20 minutes early! Bummer dude! But we went outside anyway and let Colby squirt us. He loved it. He also drove around the parking lot and did a great job. He was avoiding parked vehicles, turning away from them, paying attention. The physical therapist only had to intervene once, impressive.

TUESDAY - Day from hell at Cincy Children's. Took Colby to Hanger Prosthetics, for the 3rd time, to pick up his hand splints. And guess what?! They STILL didn't order him the correct ones. I told that dude I was going to pick up that splint and beat him over the head with it. He started laughing and looked at me, I wasn't laughing. Guess he thought I was kidding. So they're going to order them a 4th time. Once we get this mess straightened out, they'll never see our faces again, that's for sure. Then took Colby to Cincinnati Children's Hospital for appointments. First, spine x-rays. They wanted to take the x-ray of Colby sitting up, without his back brace on. Really? Seriously? That was interesting. Then went to pulmonary. His appointment was at 2:30, dr. came in to see Colby at 3:15. The appointment went fine, but that put us behind for Colby's 4:00 appointment in endocrinology, a new doctor. Usually I take our itinerary with us, but I didn't this time. So I asked the friendly nurse sitting at the pulmonary desk, where is endocrinology, please? She sends us to Location A. Well guess what, endocrinology is on E, the complete opposite end of the hospital. That made us even later getting to his appointment. Colby will definitely start infusions to help improve his low bone density. However, the endo dr. wants to wait and see when Colby is having spine surgery and what kind of surgery he's having before starting the injection treatment. We talk to the spine doctor next month, so endo is on hold for a while. Didn't get home until 8:30 Tuesday night.

WEDNESDAY -  Colby rested, I didn't. I worked at the hospital, my only day to work this week. Since we had such a wild day the day before, I just let Colby be lazy. Then Colby had a nurse from 4:00 to 10:00, so Mama went out! Had dinner at a local little dive bar with a couple of my gal pals. Dang good food though. French fries tossed it truffle oil, they were to die for! I was fantasizing about them at lunch today. Home at 9:30 and was completely worn out. In bed by 11:00.

TODAY - Getting stuff done. Got our application for Center for Courageous Kids camp ready to fax. It was due on Monday, whoops! Totally forgot. And of course it has to be signed by a doctor, so that's extra time and effort. Going to fax it tomorrow first thing. While the nurse got Colby up and going, I ran around the apartment like a goober trying to straighten up around here. Just gave it a lick and promise, but that's better than nothing. Great, fantastic, wonderful, super-duper news, Colby's IPV machine was delivered today, giddy up. Sooooo thankful we finally have it for Colby. Some time next week I'll mail the one we borrowed back to Vermont. (Thanks again O'Neills). Got to visit with a very dear SMA mommy friend I hadn't seen literally in years, and she brought her 2-month-old baby. What a cutie he is. Small world, the shelving company that I called to get a quote from happens to be owned by my SMA mommy friend's dad. Had no idea when I called and in talking to him, we put it all together. So she came out to do the measurements, and I loved seeing her. A volunteer from Hospice came out and gave Colby a massage. He loved it, but hey, who wouldn't. We'll definitely have her come over again.

There you have it, our week so far. I have a splitting headache, so I'm going to take some ibuprofen and go to bed.