I was given a gentle reminder tonight at Mass that I haven't blogged in a while. I know, sorry! So here I am, and let me fill you in on "what up" around here.
MONDAY: Colby went to school. For some reason his power chair decided to stop working right when we were loading him up for school. Yeah, I know, I was saying what the crap, too. So he had to go to school in his old, way too small manual chair. I went to the dr and got my thyroid follow-up appointments made. Oh goodie. October 22 - 26 I'll be busy with all that lovely mess. I "only" have to be away from Colby 3 days this time, not 5.
TUESDAY: Colby went to school. Also it was my birthday. My dad and I went to Cracker Barrel for breakfast. Let me just say, their apple strudel French toast is so stinkin' good I could hardly stand it. I wanted to pick up the plate and lick it clean.
WEDNESDAY: Colby went to school, and I went to work. "Uneventful" day, just like we like it.
THURSDAY: Colby went to school. Colby's dad and I went to his school for a meeting with the principal. There are a few issues that needed to be addressed. I hate having to do stuff like that. I'm really not a confrontational person. Don't laugh, I really was nervous. But I felt much better after the meeting. Kevin the wheelchair dude came by to pick up the loaner that Colby was testing with the new driving system, and he was nice enough to fix his current power chair.
FRIDAY: Dad and I took Colby to Cincy, well actually their Kentucky offices, to meet with the ortho surgeon. I was not looking forward to that appointment. Not at all. Long story short, Colby is having VEPTR surgery in the Spring. Don't have a date yet. That stands for Vertical Expandable Prosthetic Titanium Rib. Wow, I typed all that without having to look it up. They'll attach 1 device to Colby's ribs, then another to his ribs and pelvis. The device will help straighten him up, and hopefully this will work and he won't have to have spine fusion surgery down the line. There are several other SMA kiddos that have either had it done or are scheduled to have it done in the near future. It makes sense for Colby because the curve of his spine isn't that bad, only 38%. But it's the way it's curving that's jacking up his lungs, airways and chest wall, hence the surgeon thinks VEPTR is a better option. I'm just glad he said Colby could wait to have it done. Hopefully we can keep Colby healthy and stay OUT of that hospital for a while. I went out to Wick's for my birthday dinner with BFFs Amy and Pam. Cold beer, hot pizza, great friends, can't beat that with a stick.
So if you paid attention to the above, you noticed something special about this past week. Colby got in his first full week of school. Yay, yippee, yah hoo. Colby only goes Monday through Thursday to school. Took us 5 weeks into the school year to do it, but by golly he did it! Hopefully his MRSA is cleared up and he'll have another good week at school.
Other than that, not much going on. I worked half a day yesterday at the hospital. Today I watched the Colts lose. Don't want to talk about it. Keeping my fingers crossed for a stress free, uneventful, fun, beautiful weathered week. Is that too much to ask?!
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