We've had a great weekend. Wish it didn't have to end. Friday I took some "me" time. My dad, mom and brother treated me to a spa day. My BFF helped out, too, because she was able to get my services at a big discount. So I went for the gusto, baby. I had a massage, facial, mani and pedi. I had 5 fabulous hours to myself. I put my phone on silence, gave it to the lady who was doing my treatment at the time and said, unless this phone says Pam (Nurse) when it rings, it can wait! Of course I would never turn off my phone in case sweet Colby boy needed me. My TLC was much needed and I loved every second of it. The Permobil wheelchair dude came back with the new driving system so Colby's PT could see him drive. We get to keep the chair until next Thursday, woo hoo. I've had Colby out in the parking lot every day so he can practice driving. Or in his case, play with the chair elevator, leg rest and recline functions. Leave it to my kid. I think this new system will be a great option for him.
I've spent the weekend de-MRSAing this apartment. All of Colby's equipment has been wiped down, along with the filters, tubing and other parts changed out. Did 6 loads of laundry, including all of Colby's bedding. Even washed the decorator towels I leave hanging in the bathroom. Threw out all the Z-Flo covers and wiped down the Z-Flo pillows, etc. Frickin' MRSA. I'm sure I'll be doing it all again in a couple days. Stupid MRSA, go away.
Put on your praying pants tomorrow and give us a shout out if you think about it. I'm sending Colby to school. I've sat him up every day for the last 4 days, no problems or oxygen drops. Tomorrow will be his 4th day on an antibiotic. Maybe this will be his first full week of school? Good gravy I hope so. I'm tired of this running to the hospital shit. I forgot to call the bus compound on Friday to let them know Colby is getting back to school, so I'll just take him and his nurse to school before going to my dr appointment. Oh what the heck, I'll go ahead and pick them up, too. We're gonna take it one day at a time.
I've been a little frazzled lately. Hahahahaha, oh my, that's the understatement of the year. Let's face it, I've been a complete mess lately. I guess all the stress from the last few months has caught up with me. But the last few days I've felt much better. I heard something on the TV the other day. Can't remember the show. It was saying how you can't get rid of the stress in your life, so you have to figure out a way to manage it. It was a light bulb moment for me. So here's the bottom line. If I didn't have the SMA-related stress in my life, that means I wouldn't have Colby. And that's a thought I can't entertain even for 1/10 of a second, so I best be figuring out a way to handle all the bullshit that comes with such a complicated disorder. I can do this. I'm a strong, smart, independent woman (hear me roar haha.) I have God on my side. I have family and friends to help. This week is going to be a bear, but I refuse to lose my mind over it. Take it one day at a time, heck one hour at a time if necessary. Like how I give myself pep talks? Hey, whatever works. Somehow, some way, I'm going to stay calm and get lots accomplished. To be continued...
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