JUST A LITTLE SUNDAY NIGHT BLOG

The nurse is back there getting Colby ready for bed. There is absolutely nothing on TV. I mean nothin'! Seriously, football season cannot start soon enough. The only thing I can find to watch is Misery, and I've seen that enough times already. Although her vocabulary is impeccable, "You're just another lying ol' dirty birdy." She's getting ready to hobble him. Oh man, that's gotta hurt!

 What's new around here? Not much. Our week greatly improved after a shaky Tuesday and Wednesday. We went to a graduation party yesterday back in my hometown. I debated on whether to take Colby. I'm always worried about accessibility. Not to mention getting him in his wheelchair and loaded up to go anywhere is always quite the time-consuming task. But the weather was perfect, and I didn't see the sense in him lying around in his bed all day. Plus I'll admit it, I'm awfully dang proud of my sweet boy, and I just wanted to show him off a bit. Nothing wrong with that, is there?

Sundays are not exactly my favorite day of the week. They start out great. I watch CBS Sunday Morning while getting Colby up for the day. Love that show. Then Colby's dad shows up for his big 3-hour weekly visit with Colby, and my mood seems to change. Gee, can't imagine why. For the most part we get along, but really, the less I have to deal/communicate with him, the better. So then I leave while they visit. I might go for a walk, do the grocery shopping, go have brunch with friends, go to Mass, anything to give them their time together without me bugging them. Then I come back at 1:30 and leave at 5:00 for Mass. Guess I shouldn't complain. At least Colby's dad comes to see him. At least I have nursing and get to go to Mass. Yeah, it could be worse. Guess I'll stop complaining now.

Can't think of much else to blog about at the moment. I could tell you how worried and stressed I am about Colby's upcoming surgery, but I'm pretty sure people have figured that out by now. Tomorrow I need to follow up with the nursing agency. I've requested "emergency care" for Colby when we get back from his surgery. We get 16 hours/day of nursing currently, but the SMA families I've talked to say we'll need 2 people to help take care of Colby 24/7 for the first couple weeks after we get home. There will be a certain way to change him, transfer him, etc and I'll need help with that apparently. Depending on others totally sucks, but we have to do what we have to do. Colby has 5 more days of school and only 24 days until surgery. Yikes, our summer will be over before you know it. Adios for now, amigos.