Colby had his 5th day of school today. It's going okay,
considering all the newness going on there. Still a couple of issues that need
to be addressed. Won't go into too much detail on those just yet. Tomorrow I'll
be going to an IEP meeting at school. I share the feeling with many other SMA families,
we despise IEPs. They're horrible. Actually I've never met a parent that enjoy
IEPs. Nothing like having to fight tooth and nail for something you feel your
child needs/deserves. But what else is new? I've fought for that kiddo for 12
years now and see no need to stop any time soon. So look out school, Mama's a
comin'.
I do have a cute eye gaze story. The nurse was telling me
this when they got home from school today. About 20 minutes before it was time
to load the bus to come home, Colby looked at his eye gaze and said
"leave". As in, later taters, I'm ready to get the heck out of here.
Funny kid. Then a few minutes later he said "love home". Aaaaah. That's
my sweet boy. I guess at that point he was thinking he'd say anything if it
would get him out of class. He's a hot mess. His health has remained incredibly
stable. Words cannot describe how thankful I am for that. I'm still a nervous
wreck every time I watch that bus drive away. I'm hoping the more he goes to
school and the more good days he has, the less I will worry about him having a
choking incident.
Did I mention football is on now?! Holy crap on a cracker,
I'm totally geeked up about it. I won't be making it to Mass this Sunday I'm
sure, way too many games on. I'm sure Jesus will understand, right?
I've been studying my buns off for this nasty, icky, super duper hard state certification test they are making me take at work. At first I said, uh no, I'm not doing it. It's way too hard and none of this crap even applies to my job, so I'll quit before I take that test. Yeah well, that attitude didn't last long. There's no way I'd find another job making what I make per hour along with having the flexibility that I have at my current job. Dammit! I seriously don't have time for this. Too bad I suppose. Trying to find a little time every day to study. Quite honestly, my brain hurts.
I'll try to do better at blogging in September than I did in
August. No promises. In looking at my calendar for the month, it's pretty full.
I have done crap this month like lab work, a dentist appointment (pray for me),
etc. I haven't even looked at Colby's schedule yet. I know we don't have any
trips to Cincy this month, so that's good. Oh, and I'm planning a surprise party
for Colby. It's a combo July 4th, belated birthday, you're-an-awesome-kid-and-deserve-a-party
kind of party. So much to do, so little time. But it'll get done. It always
does.
Wrapping this up now. Need to watch the rest of the
Packers/Seahawks game. In case you were wondering, I love football!
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