SLOOOOOOW IMPROVEMENT, BUT WE'LL TAKE IT

Could it be? Dare I say? Is it possible? Colby is feeling better!! Our weekend was miserable. Simply miserable. Yesterday I was toying with the idea of taking Colby to Cincinnati Children's. His heart rate was over-the-top high, and he was having difficulty keeping his oxygen above 91-92. Colby's oxygen is usually 97-100. I'm not a fan of bleeding oxygen into his vent, but really didn't know what else to do. I could hear/feel gunk moving around in his lungs. Snot was pouring out of every orifice he has. Not to mention the lovely brown-red runny diarrhea he has from the antibiotic. Oh yeah, a barrel full of chuckles around here. Aren't you jealous?

But finally, last night, Colby started to seem to feel better. I gave him a full cough treatment at 10PM - nebulizer, IPV and Cough Assist. I coughed and coughed and suctioned and suctioned that kid. His oxygen and heart rate were stable/normal after that. He fell asleep immediately, and his heart rate stayed nice and low. He didn't need extra oxygen through the night to keep up his oxygen saturation. Ah, a little relief. His 2:30AM and 7:30AM cough treatments have gone equally as well. The nurse is back there finishing up his morning routine. Hoping we can get through the day with high oxygen, low heart rate and overall Colby feeling, looking and acting more like his usual sweet, funny self.

I called the bus drivers last night and the school this morning. Basically I told them I didn't know when Colby would be back to school. Colby hasn't left his bed since Wednesday afternoon. Maybe, just maybe, if he continues to do this well, we could try to sit him up in his wheelchair tomorrow. Maybe. Can't push it.

So I've done little else around here except hover over and take care of sweet boy. Even though we had nursing Saturday morning and last night, as you can imagine, I'm very hands on when Colby isn't feeling well. Yesterday the nurse and I sanitized everything in this apartment that didn't move. Door knobs, remotes, surfaces. I told the nurse, if we touch it frequently, wipe it down. I've been spraying Lysol spray twice daily and have opened the windows trying to de-germ this place. Icky germs, be gone!

My dad came over last night and made me supper. We try to get together a couple times a month to do that. He usually brings the meat - fries fish, grills a steak, etc, and I'll make the side dishes and/or dessert. Yesterday I was like, yeah Dad, I've been really busy with Colby, you're in charge of all of supper. He brought over 2 giant, beautiful T-bones as a late birthday gift to me. He also brought potatoes from his garden, which I baked, and we had salad from the Jay C salad bar. Yep, worked for me. The steak was delicious. I ate the rib eye part last night and am getting ready to feast on some steak and eggs for breakfast this morning. My mom is coming over in a bit to help out. Get the apartment back in order, take home a load of laundry to do for us, etc. It's not a total mess around here, but I could use some help. Then maybe I could sneak in a nap later before the nurse leaves.

Thanks everyone for checking in on us since Colby and I have had the feel-bads. Hoping Colby has turned the corner and continues to improve. I'll keep you posted.