Yesterday was one of the longest days. I was asked the same questions about Colby over and over. And over. If one more person asked me what size trach he had, I was going to lose it. Don't they write that shit down in the computer?! Good thing I was too worried and exhausted to go cray-cray on anybody.
I called 911 about 2:45PM Saturday. First the firemen show up. Hello boys, I'm single BTW, wink wink. Then the ambulance ride to Kosair. Ugh, we tried so hard to keep Colby out of the hospital!! While in the ER, I continued Colb's feeds. Also had his IPV and CoughAssist with us. Lord knows they don't have that equipment at that insufficient, non-SMA hospital! So I was able to give Colby his treatments. They did a chest X-Ray, which shows pneumonia. I could've told them that. We are waiting for the other lab results. Kosair's Transport Team came and got us around 7:00. Took us to Cincinnati Children's. Went to that ER. First to a triage room for assessment. Then to another room for holding until his room was ready in the TCC. I'm so thankful they had a room for a Colby. That was another big worry I had when deciding whether or not to take him to the hospital. Got up to the TCC room at 12:10AM. Colby is such a trooper! And he was way overdue for a cough treatment, so we did that as soon as we got him settled and the RT got the orders. Can't wipe Colby's behind without orders. Drives me up a wall. I said just bring me the equipment and I'll do it! But we didn't have to wait too long. Colby's nurse and RT (respiratory therapist) were very good. I watched the RT closely, she had her shit together. Good thing for her. If not, she'd probably have my footprint embedded in her backside. By that time, I was NOT in the mood for any goofball ding dongs.
I already know who Colby's nurse is today, and I'm pleased. She has worked in the TCC forever and took care of a Colby a lot when we were here in June for surgery. For now Colby is on IV Clindamyacin. We'll have to wait for lab results to see if he needs another and/or different antibiotic.
Colby is snoozing away. I should be probably. It will take a very long time for us to get caught up on our rest. I told my parents just to stay home last night. It was getting so late. Plus Colby is stable and we weren't having a true OMG Colby needs help now emergency. Just thought we would head to the hospital before it became that type of situation. My dad is on his way up now. Think I'll lay back down for a few minutes. I guess we're in a holding pattern until lab results come back. Hurry up and wait as they say. More info/updates as I have them.
I would like to give a shout out to Colby's rock star nurses. They all went above and beyond this past week helping me with Colby. They did anything I asked them to do. Wipe down this, let's try this with Colby's treatment, could you stop on you way here and grab me some lunch, rinse the snot out of this, answer the phone while I'm in the shower, help us pack for Cincy, etc. they all sent texts checking on him and are truly concerned about Colby. We're blessed to have the group of nurses we currently have. Because trust me, I know a loser nurse when I see one. We've had our share of those, too. But the ones we have now are awesome. Thanks guys and gals for helping me take care of sweet boy. Hope to be home soon!!
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