Okay, enough of the vent pressures, CO2 levels, discussions with docs and SMA talk. I'm glad to report that Colby has had a very stable day. His lungs are sounding more clear. I've had a lot of discussion with the attending about my "E" plan for Colby, trying to get as much as possible in line for the next time. We get a new attending tomorrow, which makes me nervous, but I'm willing to give her a shot. As long as she does everything my way, haha. No, seriously, we're doing it my way next time. I already have my list of demands, I mean requirements, ready for the next "E" which will be soon, Monday, maybe Sunday. Makes me ill just to think about it. Third time is a charm, right?
Here are some things I've heard during this hospital stay:
from attending dr, "You're a minimalist. I like that," referring to my if it ain't broke don't fix it approach to Colby's SMA care. Hey, it's worked so far.
from a resident dr this morning during rounds, "You look tired. You should have your coffee." Little did she know I'd already drank 2 cups.
from the hospital priest, "How is Clayton doing today?" Really, come on now. But I will give him credit, week 3 he nailed Colby's name right on the head.
from another SMA mom, "Don't can't let some snot nosed resident tell you what is best for your child." Point taken. I thought I was ballsey but wow, she makes me look like a wallflower.
from many family and friends, "We miss you all. We love you all. We're praying for you all. We want you all to come home soon." Thank you very much. Trust me, we can't get out of here soon enough.
Okay, that's about the long and short of it. I could go into some blah blah about Colby's BUN level being slightly elevated, but it's not a worry right now so I won't get into it. Colby looks so precious over there in his bed. We got him all cleaned up tonight and that little pea head of his is sticking out with that nasty tape all over his sweet face, but still as adorable as ever.
G'nite folks. Time for this mama and her mama to hit the hay. More exciting hospital news tomorrow.
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