WAITING...WAITING...WAITING...

Our weekend was UNEVENTFUL and that is simply marvelous! Colby has continued to have no problems with his blood pressure, no fever. His secretions are thinning/decreasing and he's peeing a little more. All of these are good signs. So guess what word has been brought up at rounds the last couple of days. Yep, the "e" word. Actually the docs wanted to "e" today, but I said no. I want to give him 1 more day (at least) for the antibiotics to do their thing. So...we've pretty much been in a holding pattern, just hanging out, trying to decide if Colby is ready to try you-know-what again. Even saying that word makes me nauseous after Friday and after what he went through in '09.

We had lots of company over the weekend and we soooooo loved it! It helps the time go by much faster. THANK YOU Theresa and Kim for coming up Saturday and bringing goodies, necessities, etc. So far, the KFC has not been tampered with and it better stay that way dammit. THANK YOU Amy and Judy for coming up Sunday and bringing more goodies. I'm telling you, texting, Facebooking and blogging are keeping me sane right now (well, halfway anyways.) I know this is exactly where Colby needs to be, but it's a little difficult for me being away from my friends. So thanks everybody for keeping in touch. Really, it means a lot to me.

And, Dani is in the house! Dani is Colby's friend who lives in Lexington. She's here for a sleep study and neuro visit. Not in the PICU with us, thank goodness. Hopefully it'll be a short trip for them. They brought Colby the cutest Spongebob hat. He looks so freakin' adorable in it. And Dani has told me a couple new knock-knock jokes, so we'll have to get those programmed on Colby's eye gaze soon. You can never have too many knock-knocks you know. And they brought me more diet Big Red and some other goodies. Yeah, those Reese's cups have already been tagged as my lunch and supper.

So this is day 15 of this glorious hospital stay. I've realized a few things over the last couple of weeks:

• I'm not the only one in the world with a sick kid. You see it all here, both acute and chronic, and that helps put things in perspective. I'm so thankful Cincy Children's is as close as it is for us. If it wasn't for this hospital, I'm 101% sure Colby wouldn't still be around for us to spoil and love.


• You can tell the veteran parents from the rookie parents around here. The rookies walk around with that deer in the headlights look, like, "my kid has whaaaaaat?!" or "you're gonna do whaaaaaat to my child?!" I can pick them out easily. Been there, done that. We veterans move quickly through the corridors, don't flinch at alarms and know just about every nurse, RT and doc on the unit. We have more of the don't F with me and my kid's care, and this is how it's going to be Dr. DingyPants look about us lol.


• I know a lot about SMA. Reluctantly over the years I've learned about elemental nutrition, respiratory functions, physical therapy, neurology, etc. But I still have a lot more to learn. Other SMA parents have been so helpful. Thank goodness for their understanding and friendship.


• God gave men the physical strength in this world, and He gave the emotional/mental strength to the women. Especially the mamas.


• You know what makes the world go round? Not the alignment of the sun, earth, moon. Not love, compassion, knowledge. It's COFFEE. Gotta have it, gimme it when I need it and nobody will get hurt. :-)

That's it for now. Keep you posted on Colby as soon as I can. Hopefully we'll be blowing out of this joint in the next week. p.s. - And yes, I called and left a message today to reschedule my surgery. Doubtful we'll be home by the 13th and even if we are home, won't be ready for me to be heading off for slice-n-dice.