I just took a big old capful of Theraflu, so if I end this blog in mid-sentence, don't be surprised. I'm fighting off a sore throat. But I haven't been dizzy for a couple days now, woot woot.
Yesterday Colby had one of his best days in quite a while. Today was so-so. Talked to the nutritionist at Cincy and we're making changes to Colby's diet, actually just adding a bunch of extra water. Adding it gradually over the next few weeks to his overnight continuous feeds. Toying with the idea of maybe, and I said maybe, trying Botox injections for Colby. They would inject the Botox into his salivary glands to help control Colby's slobber/secretions. I said MAYBE. Probably won't. Well, I don't know really. Need to do some more research and talk to some other SMA families. Man, you can NEVER say NEVER. I swore up one side and back down the other I would NEVER give Colby this treatment, now here I am halfway sort of considering it.
Today was Fat Tuesday. Did you take advantage of the decadence, gluttony and partying allowed on this day? I had donuts for breakfast and some of my yummy delicious muffaletta for supper. Does that count? No parades. No beads. Just delicious, fattening foods.
Yeah, that about wraps it up for now. Just chipping away at these ideas trying to get Colby back to his baseline abilities. High heart rate or not, that little crap head gets cuter and sweeter every single day. I ate my weight in carbs today and tomorrow I'm working at the hospital while Colby is at school. The End.
I just want to say....I love you and that what ever you decide will be the correct decision. You are the most amazing mother I know!
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