DAY 6 - NOT CRAZY, YET! BUT KINDA CLOSE

Colby update: mostly good. ENT has come in twice a day to check Colby's trach site and ties. They say it looks good. He'll have his 1st trach change tomorrow, early morning I assume. ENT always comes rollin in here around 7:00/7:30. We had a little scare last night. Colby spiked a fever. I freakin' freaked out. They did cultures but wanted to hold off on starting antibiotics. All I could think was pseudomonas here we come. Must have been an isolated thing because he's been fine all day today. Chest X-ray looks fine. Procalcitonin test within normal range. CBC fine. And no temp all day, yay! They accessed the other lumen on his port. The same lady that did it last time did it this time. It wasn't easy, but she got access on the first stick. That's super duper fantastic, but we're going to be so screwed when we get home. Accessing his port is not easy, which pisses me off to no end. Doubt if Katy makes house calls from Cincy to Lou. Still better than blowing out IV's all the time, though. And the coolest news, Colby is already making noises! OMGosh talk about the sweetest sound ever. My mom said she heard him make noise, but I thought her crazy was just making an appearance. Then sure enough, he started doing it more and more. So pleased. Mama update: mostly good also. Just so you can prepare, here are some words you'll be hearing over and over from me in the next few weeks: "bored" "boring" "on my nerves" "that's such bullshit" and "what time is it for crap sake" started a 500-piece puzzle last night, finished it by noon today lol. We'll have some company over the next couple days, which is always exciting. I've been getting out and going for walks but no way I'm getting out in this 90-degree mess. I did the treadmill at Ronnie Donnie today. Actually they have a decent exercise room. Getting ready to find me some grub in the cafeteria, going to watch the Reds (when in Cincy) and then go to bed. Gotta be prepared for this trach change. Hope everyone has a fun, relaxing 3-day weekend. Somebody needs to, right? I'm sure I'll have time to update tomorrow.