Been a busy day for us in the TCC. I knew it would be with the weekend and holiday over now. It's been busy in a good day. No bumps in the respiratory road for Colby SO FAR. I did my 1st trach change today and I don't mean to brag, but I did a pretty darn good job. Of course I had a nurse and RT over my shoulder the whole time talking me through every nanosecond of the process, but that's okay. Colby and I both survived haha. They've changed Colby to an extended trach, which is great because it won't be rubbing up against his neck and chin(s)! I can tell he's more comfortable with the extended one.The TCC won't discharge Colby until 2 people go through trach training/education. I said, well that's great, but I don't exactly have a 2nd person, I'm a single mom. Doesn't matter, had to find someone. The logical choice is the ex since he lives the closest, and he said he'd do it. I'm going to try and get him up here in the next couple of days to do the next trach change and other trach training. Talked to the super-expert discharge nurse about lining up supplies and nursing for when we get home. It's my understanding they also won't discharge Colby until we have nursing in place. We're in luck in that the 2 nurses who have most recently worked with Colby have extensive trach and vent experience, so I'm hoping they're available this summer and can work for Colby some. We'll only be home 6 to 8 weeks until we come up here again for Colby's freakin' spine surgery. Can't think about that now! Just concentrate on getting home from trach surgery 1st, right?
What else? Well, OT came in and stretched Colby out. Also put in a consult for PT. I want to start trying to get Colby up in either his power chair or a Tumbleform sometime soon. Massage therapy came to see Colby. He loves getting that attention for sure. We played on the iPad. I'm over at Ronnie Donnie right now. Went for a nice long walk since the weather isn't so hideous right now. Waiting for supper to be served. Mom came over here and got our laundry done. And there you have it. That's the summary of how we've spent our day. When I go back over, I'm going to hook up Colby's eye gaze for him, let him play around on it. I talked to the doctors today in rounds. I said I was as guilty as anyone, but often people talk around Colby and not to Colby. I asked them to come in and tell him why they think Colby getting a trach was a good idea. I think it helped, too. Colby is definitely in a better mood today. Thank goodness no more tears. No mama wants to see her sweet boy upset. I guess we'll watch the Reds play tonight, too. Might as well, we are in Cincinnati after all.
Okay, going to change out of my sweaty walking clothes into my "dress sweats" and head to supper here at Ronnie Donnie. Hopefully the good news and progress just keeps coming our way. Adios for now.
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