It's still two thumbs up here in Trachville. ENT came in bright and early this morning and changed out Colby's trach ties for the 1st time. He does have some swelling from the surgery, which is perfectly normal. They said post-surgery 48 to 72 hours the swelling would be at its worst, so that should start improving over the next day or so. They didn't even round on Colby until 9:30. It's always a good sign when they round on your kid later on in the day. It means he's just not a priority, the sickest kids are, not Colby at the moment, woot woot. Can't tell you what a different mind set this is for me. This is the 1st time we've ever been in the PICU for something other than an emergency, life/death respiratory issue for Colby. I hardly know what to do with myself.
In other exciting Cincy news, we now have a room at the Ronald McDonald House. They called last night and asked if we were still interested in a room. I said, uh heck yeah, and went right over and got our info and room key. Makes it nice for everyone just to get out of this hospital for a bit, grab something different than the same old cafeteria food here, take a nap, shower, etc. RMH has been a lifesaver for us, so next time your picking up some McNuggets, a Big Mac or a sweet tea, throw your change in the RMH box. Trust me, it's a great cause.
When they say this place is for the birds, they aren't kidding! Tuesday when my Dad was here, he went out for a smoke break. He goes outside and sits on this big rock, same rock he's sat on since we've been coming up here for almost 10 years now. He was sitting there smoking, minding his own business, when a bird lands on the wire above him and yep, you guessed it, pooped right on his wrist. You just had to laugh when he told the story. "Of all that length of wire, that damn bird had to come along, land right above my head, and crap right on me!" It was priceless. It was even funnier when he came back from another smoke break and said the exact thing happened again. I said no way, you're making this up, and Dad said no, he was being totally serious. Another smoke break, another bird poop incident. Well, we were all just ROFL at him, you couldn't help it, especially after it happened the 2nd time. Then I was out last night going for a walk, and I'll be a monkey's butt if a bird didn't boink me right in the head! Scared me to death! I was like, what the hell was that?! This guy was passing me on the street and he said, "A bird, man, a bird flew in your head." Can you believe that, I mean really? Luckily I didn't get crapped on, though.
So, that's our excitement to report, crazy bird incidents. Not much else going on. I'm going to meet with Child Life and PT so we can find Colby Michael something to do besides lie in that bed and watch SpongeBob. I didn't bring his eye gaze up yet because I thought he wouldn't feel like doing it for a few days. Guess I was wrong. So we'll get that up here soon. He has some apps on his iPad so we'll do some stuff with that, too. Little stinker is doing so well, time to move on and get to the fun stuff! I'm off for a walk now. Wish me luck. But before I go, please, please take a moment to pray and send get well vibes to 2 SMA Type I kiddos, Ella and Jazzy. They are very, very sick, much like Colby's respiratory illnesses in the past. They were at a hospital in Indiana that obviously knows nothing about SMA. One of the kiddos is now here at Cincy and I believe the other one is being med flighted to another hospital where they know how to treat SMA. See, this is why we have to keep pushing forward with SMA awareness. While SMA knowledge and treatment has improved greatly over the years, obviously it still has a loooooong way to go. I hate hearing how another hospital doesn't know crap about SMA. Breaks my heart for the families. Been there, done that, it ain't fun. Talk about feeling helpless! Again, I thank God every day for Cincinnati Children's Hospital. I've had issues with them, but in the long run they have taken excellent care of Colby and I'm very thankful they are only a 2-hour drive away. Get well soon, precious girls. We've never met you, but we care about you and want to see you get better as soon as possible.
No comments:
Post a Comment